I can relate to how you are feeling. My daughter was on Singulair for over 3 years and now is off for 1 week. Seems like we are gradually finding out what her "real" personality is. It is sad.
Seems that Singulair could have some of the same side effects as the inhaled steroids - both are anti-imflammatories, but it's almost like the side effects are more prominent when taken together. My daughter has been struggling with the weight gain side effects rather than the behavioral ones (although she's 15 and can't fall asleep by herself). She began to look "puffy" with the corticosteroid, but when Singulair was added (Asthma Specialist at Childrens Hospital if Phil - rated #1 - said it was like taking an antihistimine) she gained significant weight overnight, especially around the middle. Reported the stomach pains but said we needed a separate appt. since they were not "related". I'm sure the extra weight has affected her personality, or was it the Singulair? It's so hard to report side effects to the FDA when you don't know which drug is doing what, or it might be the combination.
I also feel like I have poisoned my own child. He was on it for 8 years! After 3 weeks off singulair he is starting to shine again. He is away at school and his emails are now full of information, full sentences and clear thought. He experineced all the symptoms mentioned. He has been seeing a couselor for the last year, could not sleep, stomach ache, problems concentrating etc etc.... he dropped out of college a month ago and also dropped other activities. We were on constant watch. The story broke at a time that may have saved my sons life!
We are hoping that eventually he will pick up and find a new focus in his life ... we are slowly getting our kid back.
thanks for sharing your story , when you took your son off the singular what did you replace it with?
My son was on advair and zyrtec. When I took him off the singulair, I upped him to advair250 twice a day, and then tapered him off so that now he's at advair100 once a day again. His asthma attacks usually occurs when he has a bad cold, and he sometimes uses his inhaler during baseball or swimming(clorine does it). Haven't seen a change in the asthma.
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