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My son is off singulair for two weeks now and is showing improvem...

Posted at 8:23 AM on Apr 11, 2008 by lisa4, #29461
My son is off singulair for two weeks now and is showing improvements. He was on it for 7 years and at the beginning we blamed it on steriods, even though his dose was low. When he went off the steroids, the behavior didn't stop. I questioned the allerist if the singulair could be doing it, but was told no, it doesn't have those side effects. I don't blame the doctors because they weren't given the info. He was extremely emotional, cried for no reason, had no confidence, didn't like himself. We on more than one occasion have told his older sister that when he hits his teenage years we would have to watch him for suicide, as his reaction to problems was sooo out of whack! He was on motrin for headaches 4-5 days a week(blamed it on sinusses). Unexplained stomachaches. These symptoms came on over years, not right away. I have always thought that the steroids had done damage because he took them when he was so young. Until the news reports hit, and I started reading other people's stories and doing the "OMG, that's my kid!", I never put the problems on singulair. I was still skeptical, but took him off. His symptoms immediately got 100x's worse for a week. But funny thing is, his headaches are gone, his stomachaches are gone and he seems much less emotional. The strangest thing is, EVERY night, he comes in to kiss us good night 7 or 8 times, and sometimes by the 7th time he is crying and can't explain why. This has been going on for YEARS, EVERYNIGHT, never a break. It stopped! Just stopped cold 7 days ago. Comes in once, says goodnight, leaves and falls asleep. I know this isn't a coincidence. After years of wondering what's wrong with my kid, now I feel like I've been poisoning my him for 7 years. I'm not skeptical anymore.
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Reply about 1 year ago on Apr 11, 2008 by sing, #7009

I can relate to how you are feeling. My daughter was on Singulair for over 3 years and now is off for 1 week. Seems like we are gradually finding out what her "real" personality is. It is sad.

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Reply about 1 year ago on Apr 11, 2008 by hrtprice, #7016

Seems that Singulair could have some of the same side effects as the inhaled steroids - both are anti-imflammatories, but it's almost like the side effects are more prominent when taken together. My daughter has been struggling with the weight gain side effects rather than the behavioral ones (although she's 15 and can't fall asleep by herself). She began to look "puffy" with the corticosteroid, but when Singulair was added (Asthma Specialist at Childrens Hospital if Phil - rated #1 - said it was like taking an antihistimine) she gained significant weight overnight, especially around the middle. Reported the stomach pains but said we needed a separate appt. since they were not "related". I'm sure the extra weight has affected her personality, or was it the Singulair? It's so hard to report side effects to the FDA when you don't know which drug is doing what, or it might be the combination.

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Reply about 1 year ago on Apr 13, 2008 by googoo, #7135

I also feel like I have poisoned my own child. He was on it for 8 years! After 3 weeks off singulair he is starting to shine again. He is away at school and his emails are now full of information, full sentences and clear thought. He experineced all the symptoms mentioned. He has been seeing a couselor for the last year, could not sleep, stomach ache, problems concentrating etc etc.... he dropped out of college a month ago and also dropped other activities. We were on constant watch. The story broke at a time that may have saved my sons life!
We are hoping that eventually he will pick up and find a new focus in his life ... we are slowly getting our kid back.

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Reply about 1 year ago on Apr 13, 2008 by tamara67, #7163

thanks for sharing your story , when you took your son off the singular what did you replace it with?

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Reply about 1 year ago on Apr 15, 2008 by lisa4, #7261

My son was on advair and zyrtec. When I took him off the singulair, I upped him to advair250 twice a day, and then tapered him off so that now he's at advair100 once a day again. His asthma attacks usually occurs when he has a bad cold, and he sometimes uses his inhaler during baseball or swimming(clorine does it). Haven't seen a change in the asthma.

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