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Alright. After observing my daughter for two full weeks after di...

Posted at 11:16 PM on Apr 13, 2008 by nran, #29564
Alright. After observing my daughter for two full weeks after discontinuing Singulair, I have decided to share our story. Our daughter started taking Singulair last August (2007) to relieve her allergy symptoms. I'd like to add she is an identical twin, whose sister did not need to take the medication, for she had mild allergy symptoms that were easily relieved by taking Allegra. So we clearly have a side-by-side case study where one twin took the Singulair and the other did not. About two weeks later we noticed changes in her behavior and thought it was due to the new school routine and changes, etc. Then she started not eating, and when she did eat, she ate very little. Both girls are in a select soccer league are physically active 4-5 times a week. Long story short - she stopped eating, lost weight, stopped growing and is now 2.5 inches shorter and 15 lbs. lighter than her identical twin. They are fifth graders, I might add, so 15 lbs is ALOT of weight at their age. She was withdrawn, known to have deep depressive episodes, reacted adversely to everything and, in general, wasn't acting herself since last August. She was not enjoying life at all. She is usually a quick-witted child, one with a sunny disposition and who interacts with others very well. She is joy packaged in a colorful bottle, ready to share her thoughts with you. We took her to her pediatrician, a nutritionist, a psychologist and all said she was clearly depressed and that is what led to her changes in eating. No kidding, I thought. But why? What has happened that could have changed her so drastically? I had never felt so far away from my child as I had with her during this time period. We are a close family and we pride ourselves on being able to freely express how we feel. My dear mother-in-law saw that the FDA was probing the side-effects of Singulair with children and she mentioned it to me, because she knew that is what my daughter was taking was taking. I never thought about the connection, because I take Singulair. I will add I also take an antidepressant and have made an appointment with my doctor to discuss all of this. After talking with our pharmacist and getting an exact date as to when she started taking it, I called her pediatrician and discussed it with him. We had not been to him since October, because we took her to everyone else (psychologist, etc), so he had not known exactly what was going on with her mental health. He did, however write in his notes (and told me when I called), "Discontinue Singulair if symptoms persist." Hmmmm. Exactly why I wasn't told this from the beginning, I don't know and am very bothered knowing he wrote that on her chart. Well, after taking her off it two weeks ago she is now back to her happy, connecting and eating self. People (her father, twin, and I included) noticed a change in three days from stopping use of Singulair. She has changed IMMENSELY since getting off the Singulair that it has been easy to pinpoint her taking that medication as the reason she has been absolutely miserable for the past SEVEN MONTHS. I thank God it wasn't longer and that she didn't suffer any longer than she already did, but it was a true hell to watch her go through what she did and to watch her decline and to not know (professionals included) what to do. Words diminish how we felt and how we feel now after having her back. So there you have a side-by-side comparison. One identical twin thrived while NOT taking Singulair and the twin who did take it suffered terribly, physically and mentally, while she was taking it. The allergy relief she experienced was clearly not worth the internal suffering she endured while taking Singulair. I wish we could turn back time and give her those seven months back.
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Reply about 1 year ago on Apr 14, 2008 by kate2, #7167

Please make sure to go directly to medwatch.com and file your complaint it is the FDA website.I am so happy you got your answers , now your family can have the normal life you deserve.It truly is amazing that these doctors were clueless about this awful drug.Ours pediatrician did not know a thing about the reported adverse reactions that had been reported, the label change was brought to there attention by me bringing in an advertisement from a magazine.Pitiful just to think so many have suffered ,and our family losing our son because of corporate greed .Most people would not choose a drug with such high risk for there child ,if they chose to inform us of the risk.God bless and Good Luck Kate Miller

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Reply about 1 year ago on Apr 14, 2008 by concernedcitizen, #7172

Please write to Dr. Bremner who has offered to review case studies and write about them.

http://www.dougbremner.com/

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Reply about 1 year ago on Apr 14, 2008 by sp2008, #7176

wow thanks for sharing your story! If you would like to keep us updated you can join us at
http://health.groups.yahoo.com/group/Singulair_side_effects_friends/

Stacey

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Reply about 1 year ago on Apr 14, 2008 by nran, #7178

I also forgot to mention my daughter had recurring insomnia as another side effect from taking Singulair.

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Reply about 1 year ago on Apr 14, 2008 by concernedcitizen, #7180

This is an interesting situation. I am so happy that discontinuing Singulair has given relief some these symptoms. In your case, were you allergic or asthmatic as a child. How long have you taken Singulair? Are you underweight or overweight?

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Reply about 1 year ago on Apr 15, 2008 by andromache2, #7238

"I never thought about the connection, because I take Singulair. I will add I also take an antidepressant and have made an appointment with my doctor to discuss all of this. "

I am so sorry for the agony your family has gone thru! My stomach is in knots reading this post. My biggest fear is that my daughter will experience anxiety and depression like I have.

I am a 37 year old woman with chronic sinusitus and have been taking Sinulair for years. 3 months after I had my daughter I began having horrible anxiety. Of course, I was put on an antidepressant and my condition was chalked up to PPD. It's 4 years later and I'm still on antideps and Singulair. I am so afraid of coming off of the antidepressant to find out if the Singualir is the culprit. I have stopped the Singulair and my allergies are worse, but can't tell if the anxiety is gone because the antidepressant takes care of that.

I feel like I am between a rock and a hard place.

Any advice would be appreciated.

Jacqui

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