I was put on Prednisonsone for Uveitis, inflammation of the eye. ...

You are not alone sweetie and you are REALLY SUFFERING and I am so sorry. I had heard things about Prednisone before - but experienced it experienced it for myself 3 weeks ago - I was put on a taper for severe bronchitis. I have been off for 24 days now and my body is STILL FIGHTING the side effects - unctrolled HBP, headaches, head pressure, pains in my calves & thghs, eye pressure and visual disturbances (black dots), hot flashes, dizziness, and vomitting... It seems to come and go. For a couple of days I will feel good then WHAM its baaaacccckkkk....

You are not alone. I will pray for you and hope you are able to get off soon and stay off. God bless you.

Vanessa

Boy you're not alone. Steroids can cause a lot of problems. I was on them for years. But now I only take them when needed. I just finished up with the step down 6 day dose which I couldn't finish because it was giving me an irregular heart beat, so now I can't take them any more. Yes you get the leg pain, headaches, vomiting, depression, I get an upper respiratory infection which I DID need an antibiotic for. It does different things to different people depending on how long you're on them, & some people have no problems. Some people get what is called the moon face that what it sounds like what you have & some don't. It should go away once you are off of them. But I'm not sure what you type of inflammation you have in your eye but it sounds like you need them so hopefully you can tolerate them. Did she say you could take anything for the pain? I feel for you because they are a miserable med to take but they do work.

Well I went back to my eye doctor to let him know how much I have suffered this past weekend from the severe knee pain, and to let him know ALL the other side effects I was having, which I had already told the nurse before what was going on, but the knee pain, was the worse. I was suppose to be on them another week after Thursday and he told me to take one a day 20mg, for three more days and stop. I couldn't be more happier, not only did I feel miseable I looked it too. I hope I don't have to suffer a lot afterwards. I do have pain pills I can take, for the leg pain, I hope I can get rid of this cough, I've had a cough for a while now and not sure if that's from the steriods cause there is a bad cough going around with a lot of people, mine just don't want to seem to go away. It's all just kinda scarey, and I'm glad I found people to talk about this, made me feel a lot better knowing that I'm not over reacting and these steriods do effect people in different ways. Thanks for your reply, I'm glad there are people out there that actually knows what I'm going through.. God Bless and I'll pray for you.

Hi
I've been on Prednisone for one year. I'm suppose to have Giant Cell. I have
severe problems with my knees and adema. I cannot get the excess water out of my body. My legs swell so badly I can hardly walk. I use to run and dance, now I use a walker to walk down a hall. I take it to prevent blindness but my eyes were a 150 for reading glasses and now their 350 since I went on prednisone. I look like a bull fish my face and neck are so swollen. I hate this drug but have been taking up to 60 mg to prevent blindness and now their not sure if I have the illness. I was suppose to have a biopsy but the specialist refused to do it. I just found out because he would not make any money if he did it. This is the only sure way to find out if I have this illness. In Canada we have medicare but if the doctor receives no money for a test I guess they can refuse to do it.
One doctor said if the FDA had to pass predisone today they wouldn't. That great news for all those taking it with severe side affects. Why hasn't anyone tried to invent a new drug to replace it? I guess I'm not much help. I just want to let you know your not alone out there. Take care.

My son is on predisone (down to 3 pills) and he gets wicked headaches at least once or twice a week. I am hoping he is going to go off those pills soon

poor you. me too. 160mg a day which is slightly higher than you. It is awful. my knees pain is indescribable. The weaning process seems to take 4eva & the side effects r awful. hpefully when we cme out the other side it will be worth it & we will still have our vision & pray we never have to go throught it again. hang in there.

My husband was put on Prednisone for a bad sinus infection four weeks ago, he has been coughing ever since with no relief! He only coughs when he stands up, and has been out of work the entire time. He has been to every Dr. possible and no one can help him. Has your cough subsided yet? If so, what did you do to help it?

Thanks, Cathy

There are steroid drops to treat uveitis that don't have all the side effects of prednisone taken orally. You must be monitored carefully because they can damage your cornea, but so can the uveitis.

Prednisone is a powerful hormone. It suppresses symptoms without actually "curing" anything. A shot of cortisone can suppress the symptoms of artheritis and give you time between flares when you are nearly symptom free. The same for other auto immune diseases. Unfortunately for many it has side effects of it's own ... dizziness, euphoria for some, paranoia for others, extreme sleeplessness. What concerns me is that the doctors don't seen to educate themselves about these side-effects so that they can treat their patients more intelligently. Pretty sad when we find on the internet what we can't learn from our doctors.

Well I am finally off of the prednisone, I feel a lot better, my eye is doing much better, but I am still on the drops until the 14 of this month. I am taking Xibrom and Lotemax. I use them once a day. I hope I get taken off them soon. The doctor I was seeing died in a sky diving accident, he was great. We will miss him. But I am seeing a dr that was in our practice also. As far as the question about the cough, it went away slowly as I was slowly getting taken off the prednisone. Today I went to have blood test, to see if they're were any inflamation in my body, that was causing the Uvetis. I'll probably go back in a week for the results. Thanks for your prayers and I will continue to pray for you guys. :)

My son was on prednisone for 8 weeks. He has been off of it for about 5 weeks, and he has been in severe pain ever since. His neck is stiff, and the pain radiates down his shoulders. His knee, and ankles hurt so much that he can hardly walk. He is going to see a rhumatologist next week. he will not be going back on prednisone. I don't care what the doctor says as far as i'm concerned the medication messed him up worse then the ulcerative colitis. He has now cured his uc with a natural remedy, but still is in severe pain from the prednisone!!!

Idiopathic PanUveitis- 12 pils a day (80milligrams) I am now down to 4 pills a day (20 milligrams) I had better luck on high doses regading my eye as I am blind in the left one, some sight came back, felt great, lots of energy! The weightt gain I have to deal with, blind or heavy, after no sight I will take the weight, butt it is very sepressing because I am annal about weight gain and I have put on 30 ponds. I also ttake 2000 milligrams of Cellcept daily as well plus the eye drops.
Now they are discussing Retisert, a steroid implant bt Bausch and Lomb, tthe steroid lasts three years and is only dispensed in the eye so there are none of these annoying side effects, it effects just your eye. the catch $18,000 an implant an insurance hates it. I have already had a vittrectomy, cattaract. lens implant surgery in Boston and it was not successful, I am now going to John Hopkins in Maryland. I am not a statistic there, they treat me great but I hate these medicines. Cannot sleep, joints ace, depression, cannot work, WEIGHT GAIN, Cannot get any help because husband works, it is frustrating.
GOOD LUCK!

T

I have idioapthic pan uveitis, I have had surgery, a vitrectomy, cataract, para lens implant and they all failed. Thatt was att MERSI in Boston. I am now going to John Hopkins, back on the Predisone in April (60 mg) now down to (10) in Sep. Also 2000 mg cellcept daily. I try nott tto wine because no one understands. On high doses of pred, I feel great, when I wein down it is awful and I hate the pred anyways because of the weiight (38pds) and itt ttakes me forever tto loose but the high doses help my eye. Leg cramps,, cannot sleep, muscle aches, joint aches, headaches, always hungry, confuses my menstral cycle, mood swings and depression are horrific. Any suggestions?

YOU ARE NOT OVER REACTING. I HAVE RECENTLY BEEN PUT ON THE MEDICATION FOR MY BACK. AFTER THE FIRST WEEK I WOKE UP WITH SEVERE KNEE PAIN. I ALREADY AM GOING THROUGH THE MOOD SWINGS AND THE NO SLEEP. THE PAIN ONLY GOT WORSE AS THE DAY WENT ON. THAT NIGHT I HAD SOAKED IN THE BATH TUB AGAIN, TRYING TO CALM THE PAIN. WHEN I GOT OUT, I ALMOST PASSED OUT. I SUDDENLY GOT A HORRIBLE FEVER AND CHILLS. MY HUSBAND ACCIDENTLY HIT MY TOE, CAUSING ME TO LITERALLY SCREAM. WE IMMEDIATELY WENT TO THE ER. THEY SAID THEY HAVE NO CLUE WHAT IS WRONG WITH MY KNEES AND SAID I HAVE THE FLU. THEY DOPED ME UP, AND SENT ME HOME WITH MORE PAIN MEDS. IT HAS BEEN 3 DAYS. AND I HAVE WAVES OF HEAT THAT COME OVER MY BODY AND I START TO SWEAT ALL OVER. MY FEVER IS STILL HIGH. MY KNEES ARE KILLING ME AND THE PAIN IS MOVING DOWN MY LEGS. I CAN NOT GET RELIEF. MY FLU TEST EVEN CAME BACK NEGATIVE. I HAVE NO CONJESTON PROBLEMS OR COUGH. IT'S IS SIMPLY CHILLS, COLD SWEATS, FEVER AND SEVERE KNEE PAIN. MY FACE IS ALSO SWALLON AND RED. AND AT TIMES EVEN NUMB. AND THEY ARE NOT RELATING ANY OF IT TO HE PREDNISONE. AND I THINK THEY ARE MISTAKING. I WILL NEVER TAKE THIS MEDICATION AGAIN.