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50 yr old female ( gasps @ 5-0 still) I've been on ToprolXL fo...

Posted at 3: 3 PM on Apr 17, 2008 by 2druggedup, #29686
50 yr old female ( gasps @ 5-0 still) I've been on ToprolXL for some time now. I started with Tenormin and felt FINE! The doctor then decided it was not the 'right medicine' for me and changed me to a 'new and better medication' names TOPROL XL, He started me on 50mg a day. I had experienced rapid heart beat of at least 150 bpm up to 200! My heart had to be stopped in the ER to get it back to being a normal rhythm. At the time I was 39 yrs old :( SCARY! I had every test imagined. Heart tests, lung and leg scans. You name it, I had it done to me ( thankfully, to make sure it was nothing serious). Although I do consider a heart beating that high to be serious! I already have a anxiety disorder, I noticed that my panic attacks are worse now more than ever! I am very very lethargic. Just thinking about doing ANYTHING makes me tired. I even getting tired when I talk too much! My mouth is always excessively dry. I put on weight and even paid for a diet that consisted of 2 'shakes' and one meal per day. Followed it to the "T"! and nothing ?! I've recently read that ToprolXL can lead to all kinds of diseases. One of them being Lou Gehrig's (ASL) :( I am SO very upset that medication is prescribed supposedly to make a person feel better AND I don't think I've physically felt this depleted and depressed in years! I want medical answers and I need support and words of encouragement from everyone that has been on this drug , most especially those weaned off ot it and are on a better drug. Most of the people I notice taking TOPROL XL are taking it fro HBP or symptoms other then the one's I have. I am SO confused now :(
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Reply 4 months ago on Apr 18, 2008 by vkb719, #7389

Hang in there until you can get to your doctor. I was only on the generic for 2 1/2 months before I pin pointed the med. My doctor was hesitant to blame the med but it was the only thing I was taking. Even after I stopped taking it and symptoms similar to yours went away he still didn't believe it was the med but instead blamed it on my anxiety (which I never had before taking the med!). Please be aware it takes time for it to get out of your system so try and be patient! Prayer worked A LOT For me! Take care!

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Reply 4 months ago on Apr 18, 2008 by 2druggedup, #7392

Good morning to you vkb719 :)
Thank you so much for your post. I'm having a really difficult time lately. My concentration is shot, anxious all the time, I think I have a sympton that NOBODY else has typed about. Not only do I have nightmares ever single night ( that seems to be a common occurence) but I have 'bad thoughts' ....by that I mean I "wish" for, for a lack of a better way to say it bad things to happen to the people I care about the most :*( Which in turn makes me cry-A LOT! and makes me feel unworthy of their love. Now, to people who don't know me and read this, they'll think " wow, this one really is off her rocker " trust me , that's not the case. Since all of these physical and mental changes, I've increased the dosage of my Xanax to 2 pills at a time ( 1.0 mg each). I take them to counteract the effects of the ToprolXL that I've been experiencing. Doctor's "USE" my anxiety disorder and depression for the reasons why I feel the way I do. I also get a HARD time because I go through more Xanax than I ever did before! That's because the up-ed (word/spelling?) my dosage from 50 to 100 mg---W/O a physical just because I called to say one day that my heart felt as though it was racing.

It wasn't until I came on line and onto this board in particular that I found people that have similar problems. If got a lot of things going on in my life ( like many others do) it makes the physical symptoms even more difficult to cope with. I think how can I take care of my mother when I don't feel well myself ? :( There's a domino effect. I wish I had the knowledge and power to bring the pharmaceutical company to it's knees where we ALLare now ---But we're the one's PRAYING to feel better and for nothing WORSE to happen to us. Thanks for reading me.

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Reply 4 months ago on Apr 18, 2008 by 2druggedup, #7394

Apologizes once again to all on the board. I've made a lot of typos in my posts. It's obvious that my concentration, spelling and ability to think clearly to type anything that can be understood is directly because of the ToprolXL. I thought for a long time I was losing my vision too :( I do wear glasses but I've never experienced this type of vision change ever!

My thirst-- I told my doctor yesterday that my thirst is never quenched. NO REPLY!!!!!

I ask a pharmacist questions, they say, that " most people tolerate ToprolXL and the generic well " and that's it.. Meanwhile I feel as though
my heatlh ( both physical and mental) are suffering from the effects of this medication. I don't know what to do or who to turn to anymore.. I should have called myself DESPERATE! b/c I am frustrated and scared to death now to switch to another medication after reading about coming off this particular drug.

Any/all replies would be appreciated.

Good Luck to everyone on here!

Many blessings.

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Reply 4 months ago on Apr 23, 2008 by neecy, #7556

I experienced all the symptoms you described. I am 36 years old and I was put on Metoprolol for High BP. Toprol-XL is the controlled release version of metoprolol, but is not the same thing as "metoprolol." My chest was tight, I was very tired, numbness and tingling in legs. I had panic attacks and depression. I was on them for a little over 2 months. I am currently off of meds. I was taking 100 mg. I cut it down to 50, then the cardio Doc told me to just quit taking them and that was April 3. It was rough coming off but right now I feel fine. It took about 10-11 days for me to start feeling "normal" again. I wish you the best.

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Reply 4 months ago on Apr 26, 2008 by vkb719, #7632

I had the same doctor for 10 years and I always liked and trusted him. I think, however, his judgment and diagnosis was way off while I went through this nightmare. He assumed it was my nerves (which I never had a problem with before) and told me to see a psychiatrist for my hypochondria. He added that most women experience a "down" time around my age (39)! I was so angry. After many complaints, he changed my BP medicine to Atenolol. Looking back, I think that I could have probably tolerated it and what I was experiencing was withdrawals from Metoprolol. He finally out of exasperation took me of all BP med's cold turkey which from everything I have read is a big NO NO! It was terrible coming off and I really thought I was going to die. I never called him back and went to a different doc when I had back to back sinus infection caused by the bronchiospasms I had while on the Metoprolol.
My vision is not what it was and I am going to go have an eye examination soon. Can't decide if it is just age related or medicine related but I can't stand it. As of now, I am on no meds other than vitamins. Hang in there and get someone who will listen to you!
Take care

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