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After visiting this web site everyday for the past four weeks, I ...

Posted at 2:31 AM on May 01, 2008 by concernedmomof4, #30083
After visiting this web site everyday for the past four weeks, I feel the need to share my daughter's (and my families') experience with singulair. My 8 year old daughter was put on singulair aprx. 2 years ago in addition to zyrtec to treat her allergies. Shortly after starting the drug, she developed stomach pain. After a few weeks of chronic pain, I pursued help from our pediatrician. After visits to two different pediatric GI doctors, an allergist (to test for food allergies), and an orthopedic surgeon ( because of sudden leg pain), the results were inconclusive. During this time my daughter also became very sad, angry and fatigued. She also completely lost her appetite and refused to eat much of the time. I attributed all of these symptoms to her stomach pain . In addition, she developed difficult sleep patterns and would often wake-up exhausted in the morning. Over time she also began to have more and more "melt-downs", breaking into crying spells over the smallest provocation or challenge. I recently contacted my daughters pediatrician to discuss what other testing or direction we could take to help my daughter. In the interim of making that contact, a friend told me about this web site. As I read page after page of other parent's experiences, I was in tears. I felt as if I was reading about my own family for the past two years. I say "family" because when one child is living through this kind trauma, everyone in the family is negatively affected in some way. My husband and I felt completely frustrated and unable to help our daughter. Our older children began to resent the great amount of time and energy I spent on behalf of our daughter. My younger daughter who had always looked up to and loved her older sister was sad and confused by her sister's anger and impatience.On March 29th I took my daughter off singulair. Unbelievable. Within 2 days, my daughter's appetite returned. On the second day, she came home from school and requested a corn dog and then some ice cream. She suddenly wanted to eat breakfast again. She started smiling and laughing again. She has suddenly become capable and responsible for doing her homework and chores. She is going to sleep more quickly and waking up happy. The best part is having our daughter back...the sweet, wonderful, happy six year old who I feel like I lost for two years of her life! As a side note-the return call I got from my pediatrician was that he wanted my daughter to see a psychiatrist. That's how close we were to taking another (completely unnecessary) path to helping my daughter. I also recently spoke with my daughter's allergist about our experience. At first he was somewhat dismissive. I asked him to listen to me parent, to parent for just a moment. He seemed to soften and said he would take a second look at singulair and its side effects. I encourage every parent who's child has been so adversely affected by this drug to be proactive. First, please contact the FDA to report your experience. Second, talk to your children's physicians and share, with confidence your experience. Third, share this web site or a similar one with everyone you know. I have been astounded how many children are on singulair just within my own small circle (school, church and play group). I really believe one voice can make a difference. I have to believe that for the sake of all the children still suffering.
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Reply 4 months ago on May 01, 2008 by jlamom, #7813

i am really happy for you. i posted about a month ago when the news came out. we too see a twinkle in our sons eye again. he was recently "really" hurt in a lacrosse practice and he cried appropriately -- like five minutes, and then got himself back in the game. i looked at my husband and said -- a month ago if he just bumped his head on a table he would have cried for half an hour. he gets foff the bus now and tells me everyday he had a great day and actually asks and how was your day mom in a sweet chipper voice. before he slowly walked into the house with his head down and was very melincholy (sp?!)i don't care if others think i am crazy! i know my son and he is back. i know he is sleeping better. he is not grouchy in the morning and hard to get out of bed. we are seeing less and less crying over silly little things. im so glad your doctor listened to you. we have his routine pulminologist app in june. im so interested to hear what she has to say though i don't care if she disagrees. our pediatrician agreed we should take him off and i love her for not thinking i was nuts! thanks for sharing your story.

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Reply 4 months ago on May 02, 2008 by sp2008, #7855

I am so glad things are getting better! If you haven't already come join us at
http://health.groups.yahoo.com/group/Singulair_side_effects_friends/
Its a support/info group for members here!

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