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I am soooooooo glad to have found this site. I, like many, many ...

Posted at 11:26 AM on May 11, 2008 by carlyandlee, #30372
I am soooooooo glad to have found this site. I, like many, many of you, also thought there was no way in the world all my symptoms were being caused by the Mirena IUD, because all of my doctors have told me time and time again that the level of hormones being released by this thing is SOOOOOOOO tiny that it couldn't possibly be causing all that's happening. I had the Mirena inserted in February 2007... by August of 2007 I started experiencing hives all over my body that began as a burning/tingling in my hands and feet, and within a matter of a few weeks had spread to my entire body. I now have had this on-going rash (hives) that never has fully gone away for the past 9 months. My doctors all could not tell me at all what was causing it. I have been taking antihistamines like crazy to keep it "in check" but some days even those do no good. My grandma and mother kept telling me to get this IUD out, but I told them it couldn't possibly be from it due to what the doctors had told me and because I'd had it in since February and didn't get hives until August. However, I truly believe this MUST be the cause, as it's the only new thing in my life during that time period... I've always used the same soaps, ate the same foods, and NEVER have I had any outdoor allergies. It MUST be the Mirena. In addition to the hives, I CANNOT LOSE WEIGHT, have stayed at 174 pounds since having this inserted. I have tried exercise, dieting, etc. and notice NO changes. Due to the ongoing hives my body is going through a constant fight against this allergy, and as a result, my neck has a giant cluster of enlarged lymph nodes that will NOT go down in size. Probably because my body never gets rid of this foreign body so it's continually tried fighting it and just can't so they stay swollen. I had my lymph nodes biopsied and I do NOT have cancer... I am going tomorrow morning to have it removed immediately and I will be absolutely STUNNED if it turns out to not be the cause. I am THAT certain the Mirena has caused all of this. I would NOT recommend this IUD to ANYONE. It is absolutely the worst thing I've EVER experienced in my life. I plan to get in contact with the attorney mentioned in an older post below about the class-action lawsuit. I have spent 9 months of living in pure misery with burning, itching, red and swollen hives all over my body, living in total anxiety not wanting to leave my house and have others see me and think I have a disease. Not to mention all the time and medical costs that I have incurred from seeing doctor after doctor that can't diagnose me.
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Reply 3 months ago on May 11, 2008 by backacne, #8167

my boyfriend is a doc & is convinced that I am crazy to think that my constant bloat, weight gain & new BACK ACNE is my own hormones or just my normal body........absolutely crazy. I am sooooooo in tune to my body. Right before I had this devil of a thing inserted I went off the pill...didn't want all the hormones...I never felt so bad. Thought it was just me adjusting. how could doctors think that the mirena hormones don't effect us. Then I started reading a lot of things & now know that it all this iud. I am having it taken out tomorrow. If today wasn't Sunday I would go today...Good luck

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Reply 3 months ago on May 12, 2008 by stnmtn, #8189

You had hive and iching all over your body. I have had the same problem and i didn't think it could be the Mirena. Did you have acne before the the IUD. I have little ichy spots on my back face and chest area. A few months ago I had the ichy tingly legs where I couldn't sleep, but that's gone now. I had the device inserted May 07 and removed Dec 07, becuse it was not in correctly. Shortly after having it another procedure in Dec 07, I have expienced acne on my face, chest and back, ichy legs without any sores. I always assumed it was something I am allergic to, but every ones symptoms are very simular to mine. I will investigate more in to this. Thank you ladies.

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Reply 3 months ago on Jun 04, 2008 by sweetkat2181, #8899

Hey I am 26 years old. I had my inserted in Aug 07 and startin in Feb 08 I started having very bad outbreaks of hives on my back, chest, arms and legs that burn and tingle then eventually go down. Has anyone gotten this taken out and these symptoms stopped?

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Reply 2 months ago on Jun 22, 2008 by janet1998, #9380

thanks for letting me her your story i developed sever hives last july and have been to allergists foot dr.s (thats where they started) my dermetologist have now been seeing a rhuematologist to no avail and i just started to think it is possibly my iud that i've hade for 9 yrs, it's supposed to be good for 10yrs. i cant wait till monday to see my gyn i know it must be it!. my feet are soooooooooo swollen, hard, itchy burning and hurting i can barely stand it!!

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This registry is a place to share positive or negative side effects of using Mirena. If you directly experienced a side effect while using Mirena, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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