I was just placed on Cellecept last week- 500 Mg 4 times a day- ...

I have been taking cellcept and prednisone for 7months. I am tired all of the time, gained 25lbs, have trouble breathing with any exertion, have been depressed. I have pemphigoid. I just dropped the prednisone, but still taking cellcept 2000mg day. Very expensive too. Now my potassium is getting lower each lab day. Hoping to feel better soon.
Brenda(55)

I am taking cellcept for auto immune. I have been on this for 3 weeks. About once a week a get a very nueasous feeling almost to the point of vomiting. My final dose will go up to 3000mg for one year. I will wean off of Prednisone as cellcept dosage increases.

My neurologist wants to put me on Cellcept...I was on Imurane and after three weeks spent 4 days in the Hospital due to high fevers, rigors, etc..
Seems like Cellcept's side effects are the same.
I have been diagnosed with CIDP.....an autoimmune disease and have been on a treatment plan of IVIG 5days a week, then off 3 weeks and then back on treatments etc...have been doing this for 9 months now.

Joe

I just starting taking cellcept last week in conjunction with cyclosporen so I could get weaned off of prednisone. I've been on prednisone for 3 1/2 years for an autoimmune disease but keep having relapses when I try to get off it. My other nephrologist added cyclosporen 3 years ago and I can't get off of that either. No side effects yet, but I just started taking 500 mg twice a day starting today and last week only 250 mg twice a day to see if I can tolerate it. By the way, I had another doctor that gave me simvastin and I had myopathy too! For two months it was hard for me to move - I felt like I was 90 years old. Thank God my current doctor realized what was going on... no more simvastin and I'm fine again.

I am starting cellcept on Monday. I had a stem cell transplant for ALL (leukemia)in 2003 and I have developed bronchialiitis Obliterans. I can't lift anything, I can't walk up steps and and I run out of breath just taking a shower. Pulmanologist and oncologist are hoping this may give me some relief. I am 55 - used tot teach aerobics and now I can hardly make it to work each morning. I am hoping to get my life back - - any thoughts or suggestions on what I can expect?

Yes, I am a 51 year old female who was working up until a year ago. I was put on predisone at high doses on and off for a rare disorder call dermatomyositis in 1994, which cause me to have Interstitional Lung Disease for the last 5 years. But for the last 6months I was put on Cellcept and cannot breathe. Now I feel like since I have started this drug, someone is stepping on my chest pushing all the air out. I was put on 2000mg but common sense would never let me take that high dose. I took half and got dirheara and was decrease to 1500 which I only take 500-750 a day. I believe I should have listen to the resident doctors way back in 1994 when I heard them whisper that predisone was called a killer drug. I ask my doctor and he said it is referred to as a killer drug. But taking it was less of the two evils because I will not be able to walk. I have developed pneumonia so much that it has caused scare tissue so bad that my lungs look like a death person. I pray and ask God to intervene, but I'm torn because I want to come off of predisone, and was put on cellcept to do so, but reading everybody side effects. The doctors is just substituting one bad for the other.