Welcome to Medications.com

Wow, I just found this site. The child that had strep especially ...

Posted at 10:29 AM on May 15, 2008 by judyhk, #30499
Wow, I just found this site. The child that had strep especially caught my attention. My daughter, 11, has been diagnosed with PANDAS, which is also a controversial diagnosis. I'm not sure when she went on Singular, but it was a couple of years ago due to allergies. She had bad reactions to anti-histamines. For the past two years we have been dealing with just about every issue posted here. Physical pains, stomach, headaches, joints. urination issues, high cholesterol, but the worst have been the irritability , mood issues, OCD, fears of cutting herself, bad thoughts, suicidal ideation. She was on Zoloft which made things worse, She was hospitalized at her own request. She was placed on Prozac. She's had years of therapy. She would say life is just so hard and she wants to be a normal kid. About a month ago her pediatrician mentioned that there were some reports about Singular and it would be something to watch for and discuss with the psychiatrist, He didn't seem to know much about it. Last week after another suicidal ideation I decided to research the singular issue. I had been attributing everything to the PANDAs. I was so surprised to see the similarities. I took her off of it Friday and have seen some changes already. I hope we see that continued improvement. Thanks to all who have shared stories, it's so helpful. To have hope that you'll get your kid back is great.
REPLY TO THIS POSTING | Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on May 15, 2008 by dawniesue80, #8325

Oh hon, I am so glad you found this site too. My son experienced most of those behaviors too and they were horrible. He has been off singulair for 1 month and he is sooo much happier. He is the little boy we once had and more. I am disgusted with Merck, they seem to only think about the money. I can't believe some people would jeopardize people/children's lives for money. It makes me sick every time I think about it. Please file your complaint with the FDA. Tell EVERYONE you know. Family, friends, teachers, someone you meet at the grocery store. We as parents have to get the words out because no one else is going to do it for us. Keep us updated, and good luck to you!!

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on May 21, 2008 by kacie1, #8517

I am so glad you found this site. Your son will improve it just takes a lot of time. My daughter also experienced the thoughts that she might hurt herself. She said she heard a voice telling her to cut herself or put her hand on the stove burner so she could die. This is not what you want your 10 year old to say. AFter 2 months of therapy and off singulair she only has some residual anxiety . No more voices, stomach aches, headaches or Ocd symptoms.
Singulair really needs to come off the market. Make sure you reported your symptoms to fda.gov.

Private Message me | Add as friend | Flag as inappropriate
 
Reply about 1 year ago on May 22, 2008 by judyhk, #8522

Thanks for your support, I definitely will file a report. My daughter said last night her bad thoughts have decreased. She's doing much better with coping as well, I'm sure that we will see continued improvement. The ironic thing is that I'm a psychologist. For years I've felt bad that I couldn't help my own child. None of the other professionals I know are aware of this. How many kids going to see therapists for their anxiety/OCD are really having side effects from their meds? I know that this will change the way I provide services and I will spred the word to everyone I know.

Private Message me | Add as friend | Flag as inappropriate

Make a reply to this posting:

Type your reply to this side effect post:


Medical advice disclaimer
© 2002-2007, Skylabs Inc.  |  About Us  |  Disclaimer/Terms of Use  |  Advertise  |  Contact Us  |  Site Map  |  Developed by: W3matter.com | Sleep Apnea