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Hi, I just found this site, as I am looking for an explanation...

Posted at 1:46 AM on May 17, 2008 by lpavia, #30550
Hi, I just found this site, as I am looking for an explanation for the extreme joint pain that I am having, along with swollen ankles/feet. I have been dealing with some type of chronic contact dermatitis that no one has been able to solve, since last July. I have been on numerous steroids, then on Cyclosporine, for several months, which can play havoc with your kidneys. I also started taking Singulair for the itching, which is one of the few things that has really helped. Since November, I was taking Singulair on and off. But, as I recall, I began taking it daily since around late January. Around late February, I began having joint pain, which still continues, and lately, is becoming excruciating! When it first began, I blamed it on the Cyclosporine and kidney breakdown. But, since I have been off that, the pain has continued to worsen. Then I thought it may have something to do with the Doxepin, which I also take at night for the itching. I stopped taking that two nights ago, but the pain continues to worsen. Now, from what I am reading, these blogs make me believe it could be the Singulair. Can anyone tell me how long it takes for the pain to go away once you stop taking the Singulair????? I will gladly stop taking it if this pain will go away. In fact I will be thrilled, because I was suppose to begin testing next weak for possible Lupus, because it doesn't seem that the Physicians who prescribe Singulair, are well aware of these issues. I would appreciate anyone who can give information as to how long it takes for the side effects to subside. Thank you!!! (In pain in Boca Raton, FL)
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Reply 4 months ago on May 19, 2008 by mamamkitty3, #8441

ok sweety I dont know but you could have a rare disease called Stills disease some time the rash itches and some times it does not. It causes great pain in the joints. If your lupus is negative have them run a sedrate test and white blood count test and if they are both high it could be Stills
It is actually showing up more. I started getting it soon after taking Synthroid I swear its what set it off but who can ever know. Go to www.stillsdisease.org and have your Dr run all the tests for this stuff and if he is smart if its not lupus or RA it most likely Stills
Email me any time wildflowerfultz@hotmail.com
Good Luck!
Heather F

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This registry is a place to share positive or negative side effects of using Singulair. If you directly experienced a side effect while using Singulair, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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