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I am a 49 year old male and took a 14 day course of Cipro for a U...

Posted at 3:12 AM on Jun 04, 2008 by rgregory, #31088
I am a 49 year old male and took a 14 day course of Cipro for a UTI. By day four the souls of my feet were very sore, especially first thing in the morning but no other side effects. Mentioned sore feet to Dr after 7 days of Cipro but he did not believe it was from Cipro and had me complete the course. After 14 day course of Cipro feet were now so painful that I could barely walk on them especially after resting or getting out of bed. Also burning sensation on skin of feet and hands and some minor tremor. Saw a specialist and he immediately confirmed Cipro as the culprit and advised never to take that drug family again. Have since done the whole web search thing and discovered the whole saga of these drugs. Other symptoms have also appeared, some pain in middle of back, sharp pain in middle of back of both knees, hot and cold flushes, pain in left bicep, fingers that are very susceptible to joint injury and feelings of weakness and anxiety. Has been over three weeks now since I stopped Cipro and condition shows no improvement, may even be slightly worse. About to try a shotgun approach with treatment as there appears little documented evidence of anything conclusive on line. Starting course of anti-inflams (Voltaren) and these have already reduced the pain in my feet. Also magnesium and calcium supplements (theory goes that it may mop up any remaining Cipro and there is plenty of reports from sufferers saying that symptoms continue to appear for some months after stopping Cipro), Vitamin B6 (can apparently help with some types of nerve pain and tingling) and Fish Oil (omega 3's can help reduce inflammation). Not very scientific I know and can't be sure that all these are compatible with each other but am a bit desperate at this stage. Bracing myself for a three to six month recovery (just based on experience of many others). At this stage I am just hoping that damage is not irreversible as this appears to be a real risk. As everyone here will agree it is amazing how this situation is being allowed to continue. I could have stopped my Cipro on day two or three if I had been made fully aware of the risks and what to look out for. I am no expert by any means on this but from what I can gather Cipro and its relatives do nerve damage by the very way they work. It appears that anyone taking these drugs will inflict some nerve damage but for many it will not manifest to a degree that is a problem or at least a noticeable problem. So in some ways we are all sufferers, just to varying degrees. Another point mentioned often is that the symptoms may not appear for some months after the Cipro is stopped and therefore is not always associated with the drug. Also some say there is an accumulative affect with using the drug a second or third time. Symptoms may appear only after multiple use or symptoms may get much worse and more likely irreversible with multiple use. It's all scary reading. At this stage I am just hoping I can make a full recovery. Do damaged nerves repair themselves, does the Cipro eventually leech out of our systems .... I don't know. I will post in this forum again in a few months or sooner if I make a recovery.
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Reply about 1 year ago on Jun 04, 2008 by rosaria67, #8901

Hello. I am very sorry you are going through this but know that you are not alone. It sounds like you have been doing your homework about the dangers of fq antibiotics. I took Levaquin in December and am still experiencing some problems but to a degree than in the first 3-4 months. I take many of the supplements that you are going to start taking. It's hard to say whether they're helping or not. There are many good websites you may be interested in. fqvictims.org, fqresearch.org, fluorquinolones.org, noquinolones.proboards58.com/index.cgi. There are also support groups on yahoo health. Good luck to you. I hope you have a speedy recovery.
Rose

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Reply about 1 year ago on Jun 05, 2008 by gimpinformonths, #8937

Hello, I was in the very same place you are in as were so many others. I am 2 1/2 years into this. I took 750 mg Levaquin for 6 days in Feb 06. Be very careful taking NSAIDs as they worsened my reaction. In my 3 inch thick notebook of research I found studies that concluded that NSAID drugs contributed to damage in the cartilage and tendons in joints and that is the daily pain I live with. I have nerve damage in my R achilles tendon that feels like a knife slicing across my heel and depending on my level of activity worsens or doesn't happen at all for days. I hobble out of bed and feel each and every tendon and joint in my body. I was lucky in one respect that my Dr. recognized that Levaquin was the culprit but didn't know about the NSAIDs. Keep doing what you are doing with the supplements, but what you will undoubtably find is that no one in the medical community can tell you if it will get better. They will however offer to treat your various problems, with more drugs. I am more educated about more drugs than I ever wanted to be, but now will not put anything into my body without first understanding exactly what it might do to me. A hard lesson, but one I make sure I pass along to anyone who will listen. Keep your head up and know that you are not alone, not crazy and defintely not BEAT! Find what keeps your spirits up and don't let yourself get depressed, although it's easy to just give up and wallow. My 12 yr old boy and family and wonderful friends support me and keep me going. Take care!

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Reply about 1 year ago on Jun 24, 2008 by medicator2, #9467

Hi, concerning the question of nerve damage, I know that it is certainly possible to reverse diabetic nerve damage by the use of a substance called gamma linolenic acid (GLA) which is found in Evening Primrose oil,obtainable over the counter. If you take about 3 grams per day, there will probably be some improvement, especially as you are no longer taking the damaging agent, and in the case of diabetes the reversal of damage occurs in spite of continued excessive glucose level, which is the damaging agent in diabetic neuropathy.There are other substances which also may help eg Vit B6 and benfotiamine. Dr Rob Johnston docrob44@tiscali.co.uk

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Reply about 1 year ago on Jul 09, 2008 by 44444444, #9919

I just heard about this problem with Cipro on the news last night... I tried to explain this to many Drs. and they all tried to steer me in other directions.....

I took cipro about 4 months ago and suffer with joint pain in many places still today. When I went to my Dr. he said that it wasn't from the cipro even though it started while on the medication and at that time he told me to stop taking it. I took 2 rounds of cipro 500 mg and ran into the problem to a point that I couldn't stand it anymore in the last 2 days. I was very determined to complete the medication even though I struggled so because I wanted to get rid of the infection I had.

I hear about many people complaining but not much on what i can do to get back to normal. I am very active and have been slowed a lot from this. I want to be active but not to the point of rupturing something. My biggest problem at this time is my right elbow and left knee. I have many other areas hurting (bottom of feet, left heel, wrists,etc)....

What has worked for you....what have you found best to take and not take...how long is the healing process....?

Thanks for any help...

Mike

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