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I had surgery in August, 2006 for Endometriosis, and a Lupron inj...

Posted at 8:54 PM on Jun 10, 2008 by jssrabbit, #31303
I had surgery in August, 2006 for Endometriosis, and a Lupron injection 2 wks later. That one injection changed my life. Even though it was a year and a half ago, I'm still feeling the effects. Which is what brought me to this site -- I'm searching for an answer. These were/are my symptoms: -- I experienced immediate and increasing hot flashes that lasted for nearly 6 mos. -- Extreme fatigue and the "activativation" of Epstein Barr Virus. I started sleeping 18-20 hrs/day and lost my career job because of it. -- Cognitive dysfunction, memory loss, loss of concentration, etc. -- Blurred vision (and I have otherwise perfect vision!) -- To date, I have gained 40 lbs that will not budge no matter what my diet! -- I have severe muscle weakness and burning (such as if I go up a flight of stairs). Muscle atrophy and stiffness. -- My joints (hips, knees, feet) hurt and I have a lot of back pain. -- I have TMJ quite badly and it causes my arms to go numb. Last year my doctor ordered a hair analysis for heavy metal poisoning -- and my levels were off the charts. I've read that Lupron is suspended in thimerosol, or mercury, and that raises a host of issues that I'd like to research, if anyone has info on that. Today, I am doing much better in terms of being out of bed and active, but I am unable to lose the weight, despite an organic, all natural, gluten/dairy/sugar/corn/soy/caffeine/etc. free diet! My belly is always bloated and big. I am really active, but I tire easily and still haven't been able to get over that "hump", as it were, and really exert myself. Before my surgery and the Lupron and the EBV, I was an avid dancer. It is my passion and I can hardly do it at all now. I cannot swim a full lap in a pool without my leg muscles burning. I have read of some people having good experiences with Lupron, but I have read far more horrifying ones. Part of me doesn't want to accept that Lupron is the cause of what I'm experiencing...could it really be that simple? And part of me is happy to shed the burden of guilt that "I must just not be trying hard enough" in exchange for an outside cause. I guess research and knowledge is the best medicine in this case. =}
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Reply 5 months ago on Jun 16, 2008 by skrrks, #9227

Dear jssrabbit: Don't think you're crazy - I had many of the same problems which were a result of Lupron injections. I did not lose my job, but easily could have had I not been there so long. My doctors kept saying that they didn't know what was wrong with me, and that my severe muscle pain and fatigue weren't known side effects. My life drastically changed as a result and I am still trying to recover emotionally a couple years later. My sympathy to all who have had these horrible problems. I understand that many people can take this with minimal problems (my father was given for cancer), but people should be aware of the potential for very bad side effects and be allowed to make an informed choice. It can have a huge impact on your life.
BTW, I'm just curious, do any of you who have had bad side effects have a thyroid disorder? I'm pursuing a theory - I am hypothyroid and wonder if that affected my outcome. Best of luck to all -- skr

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