Hi, I have been on Warfarin since 2002. I suffered multiple pu...

Hi, I have been on Warfarin since 2002. I suffered multiple pulmonary embolism's in both lungs. My first was in May 2002 and even though I had excruciating pain in my left shoulder area & could not lay down as this worsened the pain, the NHS x-rayed my torso!!!! & sent me home with medication for a kidney infection. I gave it a few weeks but the pain did not go completely & was moving to my right side, I was coughing up 'tablespoon' size clots of blood. My GP was not happy & spoke to a colleague at the hospital. I was sent straight in,(July) thorough tests done & I was found to have suffered multiple PE's. I tried to sue them for medical negligence but it was turned away by the court as there was not enough evidence on my notes ie; some info was not written down & most was unreadable to even other medical professionals. Since Aug 2002 I have been on Warfarin & am on this for life. A blood test showed that I had a genetic blood disorder called 'Factor V (5) Leiden heterozygote'. This causes my blood to form clots much easier & quicker than the average person. If you have this disorder, as a woman it is important that each time you have a child you are treated with Heperin after each birth. I had 5 children & was not treated therefore I suffered with my PE's.My children have been tested for this & 3 of them have it. My daughter was glad she found out before having children as she hasn't had to suffer what I went through. I ask one thing.... Please TELL your GP that you want a test for the above disorder. As I suffered my PE's & that I have this blood disorder I have to stay on Warfarin for life. If you need any more info I will tell you as much as I know. Feel free to ask questions. my email is; ******