I suffer from cluster headaches as well as several other ailments...

I suffer from cluster headaches as well as several other ailments (Doctors say..."we know it's something we just can't figure it out"...sigh). With my latest bout of cluster headaches they decided to put me on prednisone..60 mg for 4 days...30 for 3 days..etc. until I tapered down. Worked great! Headaches went away and I was feeling wonderful (terribly agitated but physically wonderful) until I went off of it (headaches returned with a vengeance. They immediately started me on a second round of Prednisone at 60 per day. Third day, on this second round, I went to get out of bed and BAM!!! fell straight to the floor. I had absolutely no muscle control below my waist...NONE! Laid there on the floor for about a half hour (trying to get up as I flailed around). Managed to finally raise to a somewhat standing position. Walked (shuffled) down the hallway to the bathroom to try and use the toilet. Went to sit down on it and promptly fell wedging myself between the toilet and the wall...(a disturbing visual). A relative helped me (how humiliating) out from my predicament and we immediately called the doctor. I was told it was not the prednisone but a flaring of my underlying vascular/soft tissue disorder and to stop prednisone. Stopped prednisone, next morning went to get up and low and behold I could stand but I had excruciating pain shooting into my hips, knees and ankles which once again made me fall (from agonizing pain). Day three off of prednisone and the excruciating pain upon rising is better but far from over. Currently, extreme muscle fatigue...so weak my poor little muscles won't even quiver. Headaches are back. Red swollen face...ack!!!...what a nightmare.