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I have been on Topamax for 2 1/2 years at 250mg for migraines and...

Posted at 2:33 AM on Jun 25, 2008 by chrisallyson, #31747
I have been on Topamax for 2 1/2 years at 250mg for migraines and have decided to get off because of side effects. I have had all mentioned: mood swings, dehydration, not sweating,tingling, dizziness, loss for words, short term memory loss,numbness, fatigue, GI problems, anorexic weight loss,rage... And this all began from the starting 25mg dose! The migraines decreased from 24 a month to 12, at best down to 6 or 7, but I seemed to hit a plateau then back to 15. I saw three different doctors and all wanted to simply increase the Topamax or add another med (Depakote, beta blocker, etc.) Finally, I found that a problem with my neck may be causing the headaches and treating that has reduced them enough for me to try and get off the Topamax. I still rely on the Relpax to get me through the bad days, but I'm hoping I can get free of the Topamax for good! I just encourage anyone thinking of starting Topamax to investigate all possible migraine causes before starting!! Topamax doesn't cure the migraine, it only blocks the pain! And the side effects are not worth it if you can find another way to alleviate the problem!
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Reply about 1 year ago on Sep 11, 2008 by fflavell, #12253

Can i ask what the treatment for the neck pain was? I have the same problem. Have tried Physio, now go to Chiro.... do you take any medication for it?

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Reply about 1 year ago on Oct 08, 2008 by chrisallyson, #13226

I have not found any treatment for the neck pain yet. In the past I had a massage therapist that worked in a chiro office. (I didn't see the chiro, just the massage therapist). That seemed to work for a lot of the pain, but it never fully goes away. I am still seeing a neuro. So far I haven't found another MT since I have moved, that was as good as the first one I had. You'll have to try them out until you can find one that doesn't do a "spa" massage, and knows what they are doing with the neck and head.

I haven't been taking any meds for my neck. I'm off the Topamax, and the headaches are no worse than on it. Now my neuro wants me off the Relpax to reestablish a baseline :(
I have tried Motrin, but in the past, Vicodin or Tramedol worked best just for the neck pain (did nothing for the headaches/migraines).

Good Luck!

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