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I started Topamax in November of 2007 the usual 25mg and worked m...

Posted at 5:58 PM on Jun 27, 2008 by summergrl, #31858
I started Topamax in November of 2007 the usual 25mg and worked my way up to 150mg. I have always had pretty thick hair and now have hair loss in the widows peak and top part of my hair. Needless to say I am devastated. I have cut myself down to 50mg in the am and 50 mg in the pm. My Neurologist states that she has not heard of hair loss but even this web site and the drug company states that it can cause hair loss. I have with the help of a very good massage therapist determined that my migraines are cervical so I am seeking a second opinion and taking myself off this drug. Not worth the hair loss if I don't need to be on this drug.
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Reply 3 months ago on Jul 02, 2008 by barbarasmith, #9718

I am so thrilled to find your posting as i was looking for some information regarding why i am losing my hair and just know it is this medication. i too started on topomax in the fall of 2007 and have always been known for my very thick hair...suddenly in the last weeks i have started losing my hair...weird. it is thinning so quickly and frankly is freaking me out. i am only taking 100 mg a day and still exeriencing my headaches...my neuro wants to increase my dosage and yet has not even given me an mri...i too believe my headaches are more cervical spine related and told her i am not comfortable increasing the meds without further diagnosis...i will be anxious to hear what you do next and how it turns out for you. thanks so much for sharing....very few places have any info on hair loss...i am starting with a new neurocenter next week and hope to get more information and perhaps a new treatment plan. what a difficult journey this has been and is...good luck.
bms in downers grove

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Reply 3 months ago on Jul 05, 2008 by beaubeau, #9807

on hair loss
everyone report all side effects to the FDA!

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Reply 3 months ago on Jul 10, 2008 by rigatoni28, #9949

I have also had hair loss from Topamax. My doctor ran a thyroid test to make sure that was not the cause. My hair keeps getting thinner and the texture is awful. Like straw. I have stopped taking Topamax because I can't function with all the side effects but my headaches are coming back and the rescue meds alone just don't help that much. I'm not sure what I will end up doing. But, since stopping the topamax I no longer get a hand full of hair every time I wash my hair so I'm hoping over time my hair will go back to normal.

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This registry is a place to share positive or negative side effects of using Topamax. If you directly experienced a side effect while using Topamax, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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