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I suffered a Pulmonary Embolism December of 2005. Following, I f...

Posted at 4:51 PM on Jun 30, 2008 by laslaman, #31932
I suffered a Pulmonary Embolism December of 2005. Following, I found out that I have Factor 5 (later we found out that all my siblings have it as well as my father). I have been on Warfarin since. I have been told by a few doctors that I will be on it for life. I have also been told by other doctors that I should have had filters put in my lungs so that I don't need the Warfarin anymore. Prolonged use of Warfarin is terrible for you, they say. At the time I started taking Warfarin, I was 39 years old. After 6 months of use I began to loose my hair as well as the curls diminished. I also developed discoloration on my upper lip, face and forehead. 8 months later I was told that I was pre-menopausal...my hormones were changing....night sweats, dizziness, nausea, severe abdominal pain, digestive problems, bowel problems, severe weight gain. They then told me that I had Vertigo and that they were not sure why it began. I am now suffering severe memory problems. When watching a movie, if a commercial comes on I forget what I am watching. I can't read without nausea and dizziness. I get headaches, terrible leg and arm pain. My concentration is very poor. I can't remember what happened the previous day or who my customers are. I don't know what to do. If I stop taking it I will run the risk of another horrible embolism (20% survival rate). My children, 12 and 15, have already lost their father to cancer. They are very concerned of loosing their mother.
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Reply about 1 year ago on Nov 01, 2008 by homerun1, #14069

Hi there...I saw your posting while researching PE, coumadin and all the other fun stuff out there. I had a PE back in August this year. A filter was put in. They want to remove it and probably put me on that stuff (coumadin). I think you might want to look into the filter and maybe aspirin therapy(I am not a doc, but have done reading). They are telling me I have some genetic thing that causes my blood to clot. Not sure where to turn to on this one. I do know the PE was massive and I am lucky that I was playing golf just one month later (YES). Good luck and look into the filter. They want to remove mine...for what reason I don't know. I need to continue taking zocor, shed more weight, keep up the exercise progam I have been on and not shove food into my mouth. Ask ?s and write down the answers...THINK!! Good luck. Peace be with you

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