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I have had endo for about 9 years now. 6 surgeries later, I decid...

Posted at 2:45 PM on Jul 22, 2008 by ferby143, #32624
I have had endo for about 9 years now. 6 surgeries later, I decide to try the Lupron Shot. I took the 3 month dose twice. I did not experience any side effects until the 2nd month, which included hot flashes, mood swings, sleepiness, no interest in sex, weight gain, horrible headaches, loss of memory, pains in all my bones, breast tenderness, blured vision and so on. I am now off the shot after being on it for 6 months, and I am worse now then I was then. My pain is back from the Endo, my stomach feels like there is a huge ball in it, I have extremes of sever diarrhea to constipation. I feel like Im going to throw up every other hour..sometimes I do. My bones hurt worse than ever. I still have no memory and I cannot concentrate very well. My Dr. will not allow me to have a hyst because he feels I am to young. I am 27 married with a child..how much older do I have to be to get some relief? So, yes I liked Lupron, it did help. but I would rather get this crap taken out than go through all of this again.
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Reply about 1 year ago on Aug 11, 2008 by jennylynn1426, #10986

It's ultimately your decision. You have 1 child and there are plenty more that can be adopted. This Lupron thing is for the BIRDS!!!!!

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Reply about 1 year ago on Oct 05, 2008 by hollycalcote, #13150

I am also 27 with pretty much the same things as you. I have had six endo surgeries and all kinds of different treatments. I also have poly cystic ovaries and they won't give me a hysterctimy either. I don't have children, but am sick of all of the crap I have been dealing with.

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Reply 12 months ago on Nov 26, 2008 by kellysnake, #14847

I think you may wish to consider getting a new doctor. I am 31 and had my hysterectomy at 29 with no children. My doctor instructed me to speak to a psychologist to be certain that I knew what I was doing and that the hysterectomy was the correct choice, but he had no problem in operating. However, I had the surgery before I knew that I had endo and kept my ovaries which means that I still have endometriosis with occasional heavy bleeding. The last time it happened, I felt that I knew what a miscarriage felt like since the blood coming out was in large clumps in addition to streams of blood. I had to wear a diaper for several days before I could get a hold of some birth control pills to control the bleeding. A full hysterectomy may help, but there are the dangers of early menopause. Look into it carefully and look into your family history. Did your mother/aunts/grandmothers have osteoporosis? If they had to take hormonal replacements after menopause, your endo may continue after menopause with the hormonal replacements. Be careful with your choice, but if the only problem is your doctor, seek out another.

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