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I am my husbands caregiver. He is on many medications the last 2...

Posted at 6:51 PM on Jul 26, 2008 by charking, #32768
I am my husbands caregiver. He is on many medications the last 26 years due to chemical poisoning thanks to our government not protecting their civilian painters at the Army Depot where he worked. He has permanent brain damage, CRS damage, memory loss and short term memory, CHF and Bollis Emphysema. Now he also has Type II diabetes a severe case as he was not diagnosed for 7+ years of testing. To make this short. He has been on many drugs for pain, diabetes, blood pressure, the brain damage, ( he is a recovering, not drinking alcoholic) Recently the doctor took him off the Codeine # 3 that he had been taking for almost 15 years, 8 per day. and gave him time release Morphine Sulfate.15 MG. They also gave him Gabapentin for the neuropathy which is severe in his feet and starting to go up his legs. He is over weight, above the waist, and has not had a problem with High Blood Pressure, for many years since taking 60 mg daily of Inderal. His Blood Sugars have been between 98-140 without medication. When he was first diagnosed he was put on glyberide and it worked so good he was off it in 6 months and totally diet controlled since then but about every 3 years he would go on it for about 6 months and then he was ok again. He has not needed it for the last 7 years. Since starting the gabapentin he went from 300 to 600 to 900 and slowly increased the dose to 1600 mg. The 300's are caps, the 600's are tablets. All the sudden he has pounding headaches, I took his BP which we had not been watching and it was 198/115 with a 98 pulse. The only change was the gabapentin and Morphine. The morphine does not seem to be causing any side effects, once he was used to getting sleepy.. but once the gabapentin was added, all he does is sleep. The blood sugars also went up with the blood pressure. His were 358 higher than they have ever been except when he was first diagnosed. I was able to get the glyberide and that is bring down the sugar levels only taking 1/4 tab 2 x a day, and the blood pressure is also coming down, it was 139/85 with a pluse of 76 which is still too fast. I talked to some pharmancy friends and they said " Its the gabapentin " so I told the doc I wanted to stop it and he said to start leveling off, one 300 mg cap every 4 days. We were down to 2 a day till Friday and saw the doctor. Due to his taking Cymbalta they did not want to give him any of the other anti depressants so they want him to back on the gabapentin up to 1200 a day instead of the 1600 a day. Taking into consideration his medical issues and meds, I don't believe this is a safe or sound decision, but I know how much pain he was in before the gabapentin. I wish they would be more forthright about the side effects of this medication. They said it only causes blood sugar issues in 1 % and they did not even address the high blood pressure etc. His pupils are also different, he has the kidney pain, but his biggest problem is sleepy.. hopefully it's not his kidneys or his heart. They did blood tests on Friday and I am asking for a EKG.. in the mean time we are monitoring both blood pressure and blood sugar 6 or more times a day. Thank you so much for sharing. It really helps to know we are not alone.
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Reply about 1 year ago on Aug 01, 2008 by charking, #10659

Continuation of Gabapentin side effects. Since the first post we have been working at stabelizing the side effects of the Gabapentin. His blood pressure started coming down as well as the blood sugars.
We saw the doctor last Friday the 25th and he wanted us to continue the Gabapentin stating that " we " would deal with the side effects. I was not happy, but with an HMO what can you do? They talked about adding either Nortripline or Amitripiline but would have to change the dosage on the Cymbalta and that is not acceptable as that is one medication that has made a major change in his outlook and I don't want that changed again.
So we continued with 2 capsules a day, one in the morning after the 15mg Morphine and one in the evening with the 15 mg Morphine before bed.
Things were about the same, no energy, unable to stay awake etc.
All he was doing was sleeping. Again I was convinced that it was the Gabapentin causing the problem. Wednesday morning after he was up and I took his b/p it was about 150/85 with a pulse of 69 not too bad, but could have been better. I said " don't take the Gabapentin today and lets see what happens. He said OK, and went to bed, but called me at work about 3 hours later when he woke and said he had just taken his medication. He fogot and took the Gabapentin. ( although he has memor loss as a medical issue, he has been much worse with the Gabapentin and even forgetting the day etc. He hung up but called back within 20 minutes and was in major pain. He said it felt like someone was pulling his eyes out of his head. He was almost in tears from the pain and he has a Very high pain tolerance, as well as medication tolerance.
Anyway he spent almost all morning in bed, ate lunch, etc and called me again and said he had to go back to bed again, his eyes were so painful all he could do is lay there with his eyes closed. Pupils were ok.
So I called the eye care specialists at the HMO and they immediatey called back and told me to get some lubricating eye drops without preservative and some lubrication oitment. I then put in a call the the advice nurse and said I wanted to talk to my husbands doctor or his team leader. She called back fairly quickly, they must have known I was not willing to let this go on any longer. I told her, " I am not being melodramatic when I tell you this medication Gabapentin is killing my husand " I want him off it now. She said she would talk to the doctor and get back to me. I reminded her he needed a short term pain reliever between the morphine doses. I said I know he just stopped it, but I want him back on the Tylenol 3 W/Codeine. He had been taking 8 per day for some time, working up to that dosage after almost 15 years. So she called again and said STOP the Gabapentin. The doctor called in the Codeine. So I went home put drops in his eyes, gave him 2 codeine and within an hour he was up and talking. No Gabapentin since then and his blood pressure is back down to 125/68 w/ a 62 pulse and his sugars are down to 126 w/o medication after breakfast of a Glycemia ceral he loves it.. and it does help with the blood sugar. His eyes are no longer painful and he is sleeping only in the early morning and a short nap in the afternoon which was his usual habit before all this happened. I can tell you stopping the Gabapentin was the best thing I have ever done and it may have saved his life. I had a phone appointrment with his doctor today and he said to monitor his vitals over the weekend, email him on Monday and let him know how my husband is doing. I said I know it will not take long to build up a tolerance again to the Codeine and what do we do then? His response was perhaps adding short term morphine in small doese between the time release morphine in the 15 mg doses he takes morning and evening. I will have to think about that. this opens up a entire new list of possible side effects.
Again thanks for allowing me to post. You can write to me personally if you would like to.

Charlotte

charking@ viser.net..

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