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I just went to the Dr. for my second Lupron injection and to get ...

Posted at 3: 9 PM on Jul 28, 2008 by tweetyrmj, #32816
I just went to the Dr. for my second Lupron injection and to get some help with the side effects. Menopausal/emotional me, started crying!!! Gawd! I went in with my list of side effects from the last 3 months (and it was long!) and wondered what was worse, the pain of endometriosis or the life changing side effects of Lupron. My Dr. is wonderful and spent an hour with me; he decided to put me on Provera (progesterone or add-back therapy) for a week to see if the side effects improve. If they do, I get my second dose of Lupron in a week. If not, we stop it all and let my body slowly try to get back to normal (although I have never known what "normal" is since endometriosis) and see how the "therapy" worked. He is strongly encouraging me to follow through with the 6 month course as that is the recommended length of time for the best results. I'm 5'8" and have lost 10 lbs. in the last three months, I'm down to 107 lbs. He told me to try and eat more if I could (although my nausea is constant 24hrs. a day) and make sure to take a daily vitamin and calcium for bone loss. He said that he has never heard of blurred vision to be a side effect of Lupron, "But every woman is effected differently." I'm really hoping the Provera works - any kind of relief is better than this! I'm still having 3-4 hotflashes every hour with extreme exhaustion/fatigue, night sweats, daily migraine headaches, nausea 24hrs. a day, life changing mood swings, and shaky hands. He kept reminding me that this only 6 months out of my life - it's not forever ... forever feels like an awful long time when you can barely get out of bed!
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Reply about 1 year ago on Aug 06, 2008 by kyriverwoman32, #10790

Sweetie, thanks for taking the time to write this to everyone who suffers from the lupron injection. Im in limbo right now about what to do. My daughter is also 17 years old. She underwent the lap surgery in June and is due to start her first shot of lupron next week. She has to do a series of shots for 6 months due to endo and IBS. After reading all these tutorials there is more negativity than positivity. Im absolutely scared to death now to let my 17 year old go thru this. I had a hysterecotomy at the age of 27 because of all the same problems and dont wont my daughter to go through this. Any suggestions would be greatly appreciated...Thank you

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Reply about 1 year ago on Aug 12, 2008 by doodiebop, #11027

I had three Lupron shots, my last in Feb-March. This is Aug and I am in such bone pain. My neck down my arms my upper back. My Endometriosis I could have lived with if I knew I would still feel lousy.My period never did stop and my pain is still there, I to was an emotional mess for three months. Now I am just in back pain arm pain a-lot never before I started these shots.

Lorraine,

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Reply about 1 year ago on Aug 16, 2008 by con2525, #11214

Stop the lupron, Find something else less dangerouse, I was given 8 doses the FDA approved only 6 shots with add back therapy protect your bones look it up, go to yahoo lupron victims, I am 29 with bone loss of the spine , movement disorder and jointpain and speech problems afterlupron no periods , memory loss, tremors seizures, spasms of the face, neck, jaw, legs, insomnia, vitamind defiency even with vitamins a calcium , migraines, dry dry skin, hairl loss

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Reply about 1 year ago on Sep 23, 2008 by mjcollins1003, #12680

I have been on Lupron for 5 months for endometriosis and will not be completing my treatment due to unconfirmed side effects. After the third injection, I began getting hives all over my body, nausea, weakness, blurred vision and very odd skin sensations. Not sure what to do, I began going to my primary care physician. After two months of mis-diagnosis, (Lyme disease being one) and two months of antibiotics, steroids and itching creams the symptoms persist. Now they are testing me for allergies. I have a strong feeling that they will not find anything. $400 dollars I have spent on co-pays and scripts...I just want this nightmare over. I am hoping these horrible; life effecting reactions will be over soon.

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Reply about 1 year ago on Nov 12, 2008 by ndurkin, #14414

I've been on Lupron for 2 months now, and although I have had many side effects, the add-back therapy my doc has me on is helping tremendously. Nothing is untolerable, though I certainly have bad days... and they are bad. I would say fatigue, foggy thinking, irritability, joint aches and occasional blurry vision are the biggest hitters for me... the add back seems to have curbed the hot flashes. Since I have an extremely advanced case of Stage 4 Endo, this is my only hope of treatment before hysterectomy. Although it's been difficult at times, my experience has not been anything as terrifying or horrible as most of the postings you find online. Not my favorite time in my life, but certainly not horrendous either.

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