Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life.
I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told
“It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every
now and then but was fine otherwise.
Then one day I was working and someone noticed my face was swelling. I looked in the mirror and
low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.”
I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!!
People at my office thought I was on a food binge like no other. My wife was stunned on how fast this
happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles.
After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt
for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could
“perform up to par.”
Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems
seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form.
90 days later I could not drive and could barely see in both eyes, now I was almost blind.
Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain.
Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone
one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call
in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful
doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been
off prednisone for a day and as some people know if you stop that high of dose for that long you may die from
adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced
a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They
hated my appearance and hated me for no cash.
One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old
regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!!
I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every
other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and
confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone
because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life.
So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research.
My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it!
Dan V