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Posted at 6:11 PM on Jul 29, 2008 by ddeboer, #32860
Thank you so much for your website. I cannot begin to tell you what this drug has done to ruin my life. I had been on it for over 4 years on a misdiagnoses (Never should have been on it) and was told “It was no worse than Tylenol.” Ok I thought as I was suffering from a few swollen joints every now and then but was fine otherwise. Then one day I was working and someone noticed my face was swelling. I looked in the mirror and low and behold my face was rubbing my glasses. I asked my doctor and he said “it will go away soon.” I am very athletic so I continued to run and work out as I slowly went from a 30” waist to a 50” inch waist!! People at my office thought I was on a food binge like no other. My wife was stunned on how fast this happened as was my family. Now the problem had gotten much worse. Constant body aches and swollen ankles. After a year I went from jogging, to walking, to using a cane to using a walker…how sad my family felt for me and no friends insight. my company then laid me off as I used the walls as a walker and simply could “perform up to par.” Next came the extremely high sugar, blood pressure, Glaucoma and I suddenly noticed I was having problems seeing. Went to the eye doctor and was told I was getting cataracts but it would take a couple of years to form. 90 days later I could not drive and could barely see in both eyes, now I was almost blind. Now 80lbs overweight almost blind with Glaucoma, high blood pressure, diabetes and cataracts. not to mention severe depression and mood swings that were unbearable, and yes still using a walker from severe muscle pain. Well the time came where I lost my health insurance and was unemployed. I was out of Prednisone one day and called my doctor. He said come in for $320.00. I said I didn’t have it and pleaded for them to call in a 30 day supply, I was told that they “weren’t a charity” and “go to the emergency room” click!! My wonderful doc was gone. Well I went to the emergency room the next day and was told “they don’t give refills.” I had been off prednisone for a day and as some people know if you stop that high of dose for that long you may die from adrenal crisis. So I stood in the emergency room for 12 hours waiting to go into this crisis! Finally a nurse convinced a doctor to see me for 30 seconds, gave me a refill and a list of welfare clinics and booted me out the door. They hated my appearance and hated me for no cash. One day I decided to end this nonsense and tread everything I could from sources I hadn’t read that were very old regarding what was wrong with me. I went on self imposed diet of 1000 calories a day and lost 60 lbs…yes!! I stated weaning from the Prednisone and took a ton of supplements I had read about. I got down to 7.5mg every other day. Yes, suffering tremendous total body aches, severe mood swings, dizziness, severe hunger and confusion but I plowed though. By the way I don’t recommend this but I couldn’t get a refill for a prescription from anyone because I ‘had made to much money.” So I turned to the Internet for everything. I bought 500 5mgs for $23.00 screw the doctors I don’t need their prescriptions. I am now totally off for 6 weeks I do have some bad stiffness, muscle aches and mood swings but after 4 years of pure hell I am truly thankful to be off this dangerous drug, it ruined my life. So I went to a new Doctor finally and my diagnoses was a food allergy and simply had a small stint of bursitis a total mis- diagnoses from my first Doctor! Doctors aren’t gods so take it from me trust yourself first and do your research. My prayers to all who suffer from this drug. Damn the incompetent doctors who wrongly prescribe it! Dan PS Does anyone know how long these severe body aches last after completely stopping. Its been 6 weeks and its just a little better. My doctor told me to fight it out or get back on pred. NO WAY!!
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Reply about 1 year ago on Jul 29, 2008 by l8308, #10563

I am so sorry you went through this being on prednisone and never needed too! You really lived a nightmare. I am still on prednisone and being weaned down. Hopefully, I will never ever have to be on it again. I do know when I was in pain the only thing that did help and this is going to sound strange but keep active. I still have some pain but it's not as bad as it was. Also, someone here suggested taking some fish oil supplements too. I found Advil to be good too! Also, the one doctor gave me Ultra for pain too. Good luck!
By the way, I had those same side effects too, the pressure in my eyes and the eye pain was horrible. I have cataracts too and I became diabetic. Also, take a multiviatmin helped me too! I hope you get some of your life back!

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Reply about 1 year ago on Jul 30, 2008 by catzmommy, #10580

No worse than tylenol?!! WTF! That doctor is on crack if you ask me. A misdiagnosis AND no clue about the drugs they are perscribing. You have really been through the ringer, sorry to hear about all of your issues the last 4 years. Your employer is cruel for laying you off for being sick. Worrying about money or how you are going to get your medications is the last thing you need when you are sick. Good thing you are now off the evil prednisone and on to greener pastures. good luck

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