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After a year of battling effects from an eye injury, an optho-neu...

Posted at 1:19 AM on Aug 11, 2008 by bella9066, #33269
After a year of battling effects from an eye injury, an optho-neurologist finally came to the conclusion that I had orbital inflammatory psuedo tumor. I was told to take 60 mg immediately and then take 2-40mg doses (AM and early afternoon). On Friday, July 18th I took 60 mg at 6:30 p.m. and was so nauseous and barely slept. That next day I took 40mg in the morning and another 40mg around 2:30 p.m.. Although I had been, throughout the year, experiencing pain in my left eye and cheek..what I experienced by 4:00p.m. that next day was more severe than ever. I started having shooting pain and a headache so excruciating that I was in tears. (I had two children naturally). By 10:30 I had several hours of this pain when the worst happened. The left side of my face drooped and I had difficulty speaking. By the time I got to the hospital I could not move my left arm and left leg. After five days in the hospital and every test imaginable (cat scan, MRI, EKG, etc) they ruled out all stroke, MS and anything else that would show up on these tests. During the hospital stay (although they did not cite prednisone for this event), they started tapering me off. I went from 80 to 50 in one of these days and thought I would DIE. There was no pain reliever/narcotic strong enough to take away the headache. I spent ten days tapering and prayed every day for the end. Sweating, no sleep, crying and did I mention...my headache has still NOT gone away. I have a couple of hours here and there without this pain but for the most part I have been in this hell even after my taper. The clincher is that NO ONE at the hospital or afterwards would admit that this was a side effect but they also could not provide a response. It took three weeks for me to work my way back to walking and using the left side of my body. Has anyone heard of this before? Good luck to all of you, it has meant a lot to read your comments.
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Reply 3 months ago on Aug 13, 2008 by catzmommy, #11077

I have never heard of some of those side effects but I can't say i'm surprised. Prednisone effects everyone in a different way. I can relate to the crying, sweating and not sleeping part. It sounds to me like you tapered too quickly. I think most doctors recommend tapering 5 mgs every week or so. I am not surprised that you were feeling so hellish with a taper like that. It sounds like your illness warrented prednisone if you had major inflamation, but I question the judement of those doctors if they let you taper so quickly. I hope you are feeling better soon.

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