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Endo Cancer? It has to be listed and discussed. All you ladie...

Posted at 2: 9 PM on Aug 17, 2008 by nancyinnh, #33529
Endo Cancer? It has to be listed and discussed. All you ladies out there that have had the Mirena removed: Are your periods lighter than they ever were? Are they still? What is the time frame of having the IUD removed & your return to what is a normal period for you? If you're still experiencing a "light" or "lighter" flow than what is your norm after having the Mirena out, get yourself to the doctor's office (NOT your Gyn), tell them you were using the Mirena & ask for an ultrasound to measure and look at your uterus. Chances are, like me, you'll have an unusually thickened endo lining. Not just thickened, but irregular as opposed to smooth. What does this mean? Well, you shouldn't have a THICK lining that keeps growing or stays the same. I was normal before insertion. (u-sounds done 2 weeks prior) At about 10 days after removal, u-sounds showed an irregular thick lining measuring at 10mm. At almost 8 weeks after removal, u-sound test showed the lining to be at 13mm. NOTE: The "C" word starts getting used if you head toward the 15mm range. Has anyone in your GYN office addressed this side effect with you? Mine certainly didn't. Not one word. They didn't even tell me what to expect after my insistant demands for removal. (I called them after to report severe bleeding and clots of tissue, to which they responded was "normal".) Ok....so if I had a heavy bleed, one would assume that the lining would be completely shed. So, why, after two cycles, and only 21 days of actual Mirena usage, is my endo lining growing like a banshee?
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Reply 3 months ago on Aug 17, 2008 by red1964, #11254

I am stunned to hear that you have been dealing with something this serious after having had the Mirena for such a short period of time. I had it for just 5 months and after removal, went immediately into menopause. I am 43 so while it's not "premature', it is early. I had been having normal periods prior to Mirena. It does sound like your body is experiencing estrogen dominance, as you described in your previous post, as estrogen is what makes the endometrial lining build up. It seems as if your body just stopped making progesterone...but you've had a few cycles already, right?

I never heard of this side effect post-removal, either. I am hoping that things settle down for you and that your body will get back to normal. I'm so sorry that you are having to go through this. All we wanted was a safe, effective form of birth control.....no one ever mentioned things such as this. Take care of yourself.

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Reply 3 months ago on Aug 17, 2008 by red1964, #11255

In answer to your question, I meant to add that I never got another cycle on my own after the Mirena removal. Two days after removal I had 2 days of only slightly heavier than spotting bleeding and that was it. But obviously my body wasn't producing much estrogen on it's own....bloodwork (when I started having hot flashes) showed that my estrogen was almost nil.

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