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My daughter is 12 and just started taking Prednisone 5 days ago (...

Posted at 10:58 PM on Aug 19, 2008 by jmmm70, #33624
My daughter is 12 and just started taking Prednisone 5 days ago (40mg - she weighs 105lbs) .. I've been watching her salt intake - tonight she looks a little pale to me - is that a side effect? has anyone else experienced that? She has Ulcerative colitis (2 years this month) - started w/asacol, colazol, 6mp (gave her pancreatits) now is on methotrexate since Nov '07 - was put on prednisone because of a recent flare - to me none of these medications have put her into remisson - always goes 3-5 times a day - sometimes blood - sometimes not - don't know if prednisone will help - so afraid of the side effects - Dr. said if it doesn't - Remicade will be the next option - after that surgery - only thing - my daughter has never complained of pain - except when she was on 6mp - sorry for babbling - just so scared...
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Reply about 1 year ago on Aug 20, 2008 by dima82, #11388

Hi, I'd suggest that you visit:

http://www.fibermenace.com/

There's a lot of great helpful helpful info on UC. Keeping a 12-year-old on corticosteroids is very risky, so, try your best to put the disease into remission naturally. Good luck!

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Reply about 1 year ago on Aug 23, 2008 by mmontesa, #11513

I know how you feel. My son was diagnosed in February and was placed on prednisone also due to a flare.I have read so many horror stories about this disease. I worry every day about the disease and the side effects of the medications. I know how you feel...seeing one's child suffering is hell. Keep the faith ...we have to for out children. Please write back if you need to.

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Reply about 1 year ago on Aug 23, 2008 by mmontesa, #11514
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Reply about 1 year ago on Aug 23, 2008 by mmontesa, #11515

I know how you feel. My son was diagnosed in February and was placed on prednisone also due to a flare.I have read so many horror stories about this disease. I worry every day about the disease and the side effects of the medications. I know how you feel...seeing one's child suffering is hell. Keep the faith ...we have to for out children. Please write back if you need to.

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Reply about 1 year ago on Aug 24, 2008 by catzmommy, #11531

Sorry to hear your daughter is taking prednisone. It's hard enough for an adult to deal with the side effects. :(

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Reply about 1 year ago on Sep 10, 2008 by airamluc, #12246

Good evening,

I've been using remicade for 3 months now and have been through 4 infusions. My UC has gone into remission somewhat but Remicade doesn't seem to be the answer either. I too have tried all but one of the prescriptions you listed and nothing worked or provided as much relief as the Remicade has but now I suffer from the side effects of Remicade. I have severe body aches for about a week after and other flu-like symptoms. My infusions are 8 weeks apart and by week 4 I start feeling crappy again so all in all I only feel good for about 3 weeks of every 8. I'm sitting here in tears trying to decide whether I want to continue with this so called "treatment" which doesn't seem to be the answer either. I'm at a loss for words. I wish you and your daughter the best of luck.

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Reply about 1 year ago on Sep 10, 2008 by airamluc, #12247

Good evening,

I've been using remicade for 3 months now and have been through 4 infusions. My UC has gone into remission somewhat but Remicade doesn't seem to be the answer either. I too have tried all but one of the prescriptions you listed and nothing worked or provided as much relief as the Remicade has but now I suffer from the side effects of Remicade. I have severe body aches for about a week after and other flu-like symptoms. My infusions are 8 weeks apart and by week 4 I start feeling crappy again so all in all I only feel good for about 3 weeks of every 8. I'm sitting here in tears trying to decide whether I want to continue with this so called "treatment" which doesn't seem to be the answer either. I'm at a loss for words. I wish you and your daughter the best of luck.

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Reply about 1 year ago on Nov 06, 2008 by prayer, #14233

I am so sorry for your daughter, I am 28 and i had some major breathing problems out of the blue one day and major sinus problems they put me on prednisone now I have been on 10 to 20 mg for 8 years, not to scare you but I cant get off this, I have gained 100 extra pounds my face is mooned face and I have developed tumors and everytime I go to taper down it gets bad, you cant just stop this med it can be fatal. But your daughter due to her illness may need this med. I wish there was and alternative. I have to homeschool my children due to this med. Because of my immune, again sorry and if you want email me at hacklera@windstream.net

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Reply 11 months ago on Dec 21, 2008 by kins, #15411

Please do not settle for giving your daughter such a dangerous drug as Remicade until you research the mounting evidence and trials that are going on using long-term antibiotics to treat this disease. Even WebMD is now reporting that some in the medical community suspect that bacteria is the cause.

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