I have been on warfarin for approximately 16 years for DVT and PE...
I agree-there is a need for a discussion on long term warfarin use. I have been on it 18 years because of an aortic valve replacement (St. Jude). I'm only 34 and hope to be around a long, long time, and the plan is to be on warfarin forever. I think I have been really lucky with side effects, or lack of. I've been on the stuff since I was 16 so it is pretty impossible to directly connect anything to the warfarin, but I have noticed a significant change in my hair-it is much thinner-and there is no other reason for that change. My doctors give me the same answer-no one knows much about the long term effects.
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lou gerhigs disease warfarin rare disease dvt long time aortic valve replacement long long time st jude 18 years doctors
