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I was on Lisiniprol for 91 days as an ACE inhibitor for diabetes ...

Posted at 4:25 PM on Sep 11, 2008 by hwylder, #34396
I was on Lisiniprol for 91 days as an ACE inhibitor for diabetes and kidney protection. All was find except for a constant feeling of burning blood all the time. It was tolerable though. But on day 91 I developed hives. 14 days after that I was broken out from scalp to sole of my feet -- feeling miserable and no relief in site. Dr. told me that I was allergic to something and to take benadryl. 3 doctors later I was told that I had hives and had to learn to live with it. He increased my benadryl. I took myself off all my meds except insulin -- not knowing what was going on. I researched and discovered the this drug should NOT have been given to me because I also have SJOGRENS (an autoimmune disease akin to Lupus). The hives got worse, my benadryl was increased by the drs. Finally I passed out due to benadryl toxicisity (overdosed) and they put me on prednisone. To this day -- 6 months later -- I still have hive outbreaks that are miserable. I have missed a day from work every 7-10 days. The prednisone helps, but as a diabetic it sends y blood sugars through the roof. My rheumo has put me on doxepin (an antidepressant) because it has an antihystamine property that seems to be helping. It is also useful for the rheumotoid arthritis that comes from Sjogrens and such. I am sleepy a lot -- but that could be from the doxepin. I will never take Lisiniprol or any other ACE inhibitor. I am suffering and the worse part of it: the doctors and medical profession don't care and simply tell me to learn to live with it.
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