| Posted at 10: 4 PM on Sep 18, 2008 by nancboutique, #34667 |
Hi there! I have Alopecia as well and was diagnosed at age 14 and am now 31 and I have been getting Kenalog injections since I was 15. When I was first diagnosed I lost all of my hair and was on everything but the injections...my parents didn't want to put me through it. My mom got me Emla (spelling may be wrong) topical medication that numbs the skin and that really helped. Overall, I have all of my hair back and injections are the only thing that work for me and many others but everyone is different you only know by trying. Atrophy is the only side effect I have had but that is never that bad. That is a hard age to go through this this at, how is she handling everything?
my 11 y/o daughter has a chronic headache condition (NDPH), a non-stop headache since Oct.29,07. She had a supraorbital nerve block, occipital nerve block using Kenalog. Her first injection was only the occipital nerve block, then 2 weeks later, repeated the occipital nerve block and added the supraorbital (above eyebrow) nerve block. This was July 2nd. On July 10th, she started her first period...it lasted 19 days! Then, she had a week off, a week on, a week off, a week on, a week off........now, it's been 2 weeks since her last one. NOW.....I am seeing that the period was probably brought on by Kenalog and that the irregularity was too!
The other thing: She developed INDENTIONS across her forehead, they showed up on Aug.6th. One if very significant, the other 3 are smaller. There is some discoloration (greyish) and there is scarring at the injection site. We took her to the pain mgmt. doc who did the procedure and she had researced it, after our call, and told us SALINE INJECTIONS would help to plump the indentions back up. She sent us to a Cosmetic Dermatologist b/c she'd not seen this or treated this before and he had. We saw him and he is waiting to talk to our pedi-neurologist to find out if she is a candidate for Saline Injections without effecting the nerves that are already messed up from the NDPH.
I am very upset about the side effects....we were NOT informed this could happen!!!!! The indentions are VERY TENDER! They are already at the site where her headache/nerve pain was severe..now you can't even touch across it! Hopefully her periods will regulate and stablize! What a way to start your first one!!! UGGGHHH!!!! No one told us that could happen either! We had a doc fixing to put her on hormone therapy (BCP's) to regulate her! We are now waiting to see if it stablizes.
My daughter has a great attitude about it, she has bangs and just said, "I'll just keep my bangs long enough to cover it up!!!"
I would NOT have taken the chance on this and do NOT recommend anyone with a child to take the chance with it! It wasn't worth what we ended up with!!!!
Hi. I have alopesia areata too. I had it for 5 years consecutive, then my hair grew and stopped falling for two years. Now it is falling again. For those 5 years the treatment did help in making the hair grow back (it doesn't prevent it from falling though) and I didn't have any side effect. However, I went to my doc to get my injections 2 weeks ago and 2 days ago I realized indentations on the areas that were injected. I called my doctor to ask him about it and he said that it is a known side effect but that it should go back to normal on its own. I don't know much about it since it happened recently, this is why I'm browsing this web page.
I've been diagnosed with aloepcia since i was 3 in the 70's the only med was steriod's.I had an episode when i was 16 and all my hair fell out. I am now 32. when I was in my 20's i was curious about hair because all i had was memories of mine, but all they had was rogain for people that was recently diagnosed. Now 2 years ago my californian physician named Dr. Neil Flynn @ UC Davis hospital prescribed me CLEBETASOL. My Beautiful Black Hair has not stopped growing. Now My 3 year old daughter has it and I am not scared because science is alot better then it was 30 years ago. Besides the lesson that i learned is the same lesson that i install in her " BEAUTY IS SKIN DEEP " Hair or No Hair
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