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Boy, this could take a while. Have been on generic Levoxyl for m...

Posted at 3:50 AM on Sep 25, 2008 by lorrieps, #34907
Boy, this could take a while. Have been on generic Levoxyl for more than 7 yrs(can't say exactly how long since I stay "fuzzy headed" all the time). Anyway, about a yr ago I became so depressed I went off all my meds -- I'm a diabetic on insulin and also have high blood pressure. I felt good!To try and make this story a little shorter, I went on a diet and lost 70 lbs -- went from 310 down to 240. Then I went back on meds. In less than a yr, have regained all the weight I lost. Also, my legs swell and ache so badly it makes walking painful. Hands, wrists and knees throb constantly. Intermittent headaches so bad I have to wear sunglasses just to tolerate indoor lighting. Hair loss is so severe I'm considering a wig. Skin is dry and itchy and lotions help not at all. Any work I have to do I must accomplish before noon because by early afternoon the fatigue is debilitating. I'm currently on 300mcg of Levothyroxine (up from 250mcg 2 months ago) and doctor wants to increase dosage even more. Had no idea there were other people suffering the same problems until I stumbled upon this site. I take the medication as prescribed (with perhaps less than the recommended full glass of water) but plenty of coffee. Discovered on another site that the coffee may be inhibiting the drug's absorption. I feel so helpless/hopeless. Am considering going back off the Levothyroxine but am seriously worried about high T3/T4 levels. Thanks for listening; guess I just needed to vent.
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Reply about 1 year ago on Sep 25, 2008 by karen_in_tennessee, #12762

Hi:
I just read your post about you taking Levothyroxine and having a bunch of symptoms. I have hair loss from my Levoxyl and it never gets better. Everyone keeps telling me that once I am level that my hair will stop falling out. I am still waiting for a miracle. When you say that your hair loss is severe, are you losing a whole lot each day? I was told by someone else that the generic form is the worst for swelling and also for headaches. Have you ever tried Levoxyl? They say that Armour Thyroid is suppose to help with all these symtoms we have. I am just not sure about that one though. I like you have wanted to stop taking my thyroid meds because of the way I feel but I still take it faithfully everyday. I hope you get better.

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Reply 12 days ago on Oct 26, 2009 by splanter, #23862

I took Levothyroxine for approximately 1 year after my thyroidectomy in 2004. My doctor considered increasing my dose to get the levels normal, until she asked to see my medication. At that time she realized that the pharmacy was giving me the Levothyroxine as opposed to the prescribed Levoxyl. My doctor indicated that although many would have us to believe that the medication is the same, it is not. My levels did not become normal until my doctor faxed a statement to the pharmacy requiring that I be put on the brand name (Levoxyl).. after taking the brand name for about 30 days, my levels became normal. Although, the side effects that I experience from this medication is something completely different!!!!! A complete nightmare!!!!!

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