I have been on the Fentanyl Patch for about 5-7 years now, for a ...

I have been on the Fentanyl Patch for about 5-7 years now, for a condition called Loin Pain Hematuria Syndrome. It's rare (but more people are showing up with it) that is not life threatening and has no cure, but consists of serious pain in groin (loin) area, side pain (near kidneys) and sometimes around to back. It also consists of mid to large amounts of blood in the urine, it's known have thin blood vessels in the kidneys that allow blood cells to enter urine, but no real known reason of its cause. I am still pain free (just have discomfort on the third day before I change to a new patch) but after the first few years have started to have a lot of side effects and withdrawal symptoms. I change my patch at night and on the first day (the next morning) I feel fine and have no issues except a little sleepy from the night before. On the second day I get very sleepy, anxious, somewhat agitated easily, and a little depressed. On the third day, when I have to change my patch that night, I am even more sleepy to the point where I can barely keep my eyes open and they are heavy, all through the day and evening, I too have some memory issues but are not as much as the other side effects, I get low grade fevers that I can feel change over different areas of my body, shallow breathing in which it feels like it is sometimes hard to catch my breath, urinating often with not a lot of urine coming out (on third day only), some body aches, worrisome, more depressed, and weakness. Then after I change my patch the third night and it absorbs, I am wide awake and can hardly sleep. I even wake up every few hours on the second night, but the night I changy my patch is the worst, so I am tired the next day which is the first day on a new patch and the three day cycle starts all over again. I like that I am pain free, but at what cost? I am going to talk to my doctor again and they cannot pinpoint the nerves or areas of pain so I cannot have a pain pump, and I changed to this because I was getting so much break through pain between any pill form of pain medications. I did not like having to take pills every 4-6 hours. Has anyone else had this on Fentanyl or had the condition I have?