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I was only on 25 mg of Topamax for two months and had to stop due...

Posted at 4:26 PM on Oct 06, 2008 by neuro58, #35368
I was only on 25 mg of Topamax for two months and had to stop due to the terrible side effects of mouth numbness, taste aversion and severe dry mouth. Unfortunately, the side effects have gotten worse and persisted now for six months after going off this medication. My personal thoughts: Topamax is the worst drug on the market, has negatively impacted my life, and my neurologist could care less. These symptoms are with me 24/7 and only mildly helped by expensive mouthwash and lozenges specially formulated for dry mouth. Actually, eating certain foods makes these symptoms worse and I am afraid this is permanent, but can find no scientifically plausible evidence to explain such lingering effects. If anybody else has experienced such long-term symptoms after going off this medication, please share.
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Reply about 1 year ago on Oct 07, 2008 by aleancol, #13211

You are not alone. I actually filed a complaint with the FDA (fda.gov) and encourage you and everybody out there to do the same. I am also looking into action.I am still unable to control my bowels and my legs and arm are still numb. Constant vomitting and other problems as well.

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Reply 9 months ago on Jan 31, 2009 by melissa14, #16612

So I just started on 25 mg a day 1 week ago and increased to 25mg 2 times a day and now I'm getting tingling in my fingers and toes, flat tasting soda. I'm scared I'm gonna get all that other shit also. I think I should get off of it. What do you think?

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