Welcome to Medications.com

Hello everyone! I just want to thank each and every one of you fo...

Posted at 6:24 PM on Oct 06, 2008 by italian, #35371
Hello everyone! I just want to thank each and every one of you for your postings. On more than one occasion I would come to this site because without all of you I probably would have truly lost my mind. I just want to give a brief history of what's been going on with me because if it can help one other person then it's all worth it. In 2005, I go vaccinated for chickenpox, I work in health care, never had them, and wanted to start having children since I'm 36. A month after the vaccine I broke out in a horrific rash ALL OVER and had it until April of 2008. I went to the hospital where I had the vaccine, 5 dermatologists, 3 Infectious Disease, various medical doctors and no one knew what it was. This April, I was admitted to the hospital with Autoimmune Hemolytic Anemia. After 3 hematologists, the last one feels the vaccine threw my immune system into a tizzy. I started with 60mg of Prednisone and eventually got down to 2.5mg. The hemolysis(body produces antibodies that attacks it own body) started again so I went to a new Hematologist and was put back up to 30mg and just got put down to 10mg today. Right now my biggest concern is the hair loss. I use to have such thick hair and now I cry almost daily because I loose so much. I am going to try the Ensure like someone posted just to see if that helps. I drink protein shakes, take Silica, multivitamins (Solgar) that have biotin, and going to try Nioxin shampoo. I have terrible mood swings and now I feel like I am going through withdrawal. It's almost like I want to take more just to feel better. I know that sounds crazy. The big fat moon face, my joints feel like they pop out, confused easily, can't sleep, and just can't really leave my house and live a normal life since April. I HATE IT!!! The only thing that helps me feel better when the daily prednisone "kicks in" is walking and exercising. I feel so bad for everyone this drug is just awful. I get angry because not one person told me what life was going to be like on prednisone. I think that is just mean. That's why these postings are so important. I know this is entirely to long but I feel so much better getting my story out there. Did everyone's hair eventually grow back. I don't know if I will have any left next month. Thank you all so much. GG
REPLY TO THIS POSTING | Private Message me | Add as friend | Flag as inappropriate
 
Reply 9 months ago on Jan 16, 2009 by katiep1408, #16048

Hi! I was also diagnosed with AIHA and ITP in November of '07 and spent nearly a month in the hospital where I was pumped with prednisone. When I finally got out I was on 200mg of the nasty drug. I experienced just about every side effect possible and the moon face appeared practically overnight. After a couple of months, like you, my beautiful, thick hair started to come out by the handful. I hated to shower because I knew how much would fall out, and I always felt like my hair was my best feature so it was incredibly disheartening. I tried a few different shampoos and the CVS brand hair, skin, and nail vitamins, but I believe time was the answer. Now my hair is almost totally grown in, and cut into a cute bob. I know exactly how you feel about trying to live a normal life, and I am still surprised at myself for going back to college only weeks after the hospital to my surprised friends with my huge, ugly face. Everyone was so nice and supportive and it is amazing to hear that I look almost normal after this traumatizing year dealing with those side effects. I did a lot of research online and decided the hair loss was actually something called telogen effluvium, and my hair falling out was a sign that new hair was simply pushing it out after it paused growth. I'm sure that's what is happening to you, and it'll be a matter of time before you feel a little mohawk of hair growing in! My face is almost completely back to normal except for somewhat chubby cheeks and a tiny bit of chin, but that's probably because of the 30lbs I gained while on the drug that I'm currently doing weight watchers to get rid of. Once you get off of the prednisone you will see an improvement, and don't get too discouraged at the length of time it takes. Do your best to better yourself in the meantime and you'll bounce right back and be just as gorgeous as before. I hope this helps, and I wish you GREAT luck!

Private Message me | Add as friend | Flag as inappropriate

Make a reply to this posting:

Type your reply to this side effect post:


Medical advice disclaimer
© 2002-2007, Skylabs Inc.  |  About Us  |  Disclaimer/Terms of Use  |  Advertise  |  Contact Us  |  Site Map  |  Developed by: W3matter.com | Sleep Apnea