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24 yr female diagnosed with PE and DVT. I have been on Warfarin s...

Posted at 11:14 PM on Oct 06, 2008 by maggie14, #35380
24 yr female diagnosed with PE and DVT. I have been on Warfarin since may of 08 and it has turned my world upside down. Weight gain (20lbs in 3 months), major hair loss, very bad acne, and memory loss. Not to mention i can't shave my legs or anything else for that matter with out getting major in grown hairs. I NEVER had any of these problems before. I am loosing muscle mass and feel as if I am a 70 year old woman. I don't know what to do but cry. The doctors keep telling me its not the medicine but I feel it is, my body is telling me it is. things are not easy, and it is affecting me I feel for the rest of my life.
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Reply about 1 year ago on Nov 01, 2008 by puddycat, #14062

Me to I feel like a old women. My legs hurt so bad, I want to cry. They hurt all day, but at night I cant take the pain.And my hair is fallen out, and i gain 11 lbs since sept. I take 10 mgs of warfaine. My doctor said it is not from the drug. But I was fine before take it. I just want to hit him.Can anyone help. Us

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Reply about 1 year ago on Nov 01, 2008 by puddycat, #14063

Hi I have the same side effect. Pain in my legs worse at night.Hair lose. and weight gain 11 lbs since sept. And I am not eating .Pain in my hands. I told the doctor ,he said those are side effect from the drug> I am about to hit him. Can anyone help Us.

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Reply about 1 year ago on Nov 16, 2008 by pinkleeanne, #14564

Hi my name is lee-anne, i sooo know how you feel, i am 28 and had p.e after my first baby last year and since being on warfrin my whole body changed i even had to have physio where i had so much ache in muscles and even my bones, so frail and weak, it has to be the drugs. I now was told to stop warfrin fri and i am so afraid i lost my saftey net and live in fear every day of getting another one and not being so lucky next time, sorry i just want to hear some positive outcomes of coming off of the warfrin, is there any out there? lol Xxx god bless

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Reply 12 months ago on Nov 26, 2008 by gailspersmail, #14837

If your doctors are dismissing the description of your symptoms, find another doctor until you get someone who listens. Your symptoms are real. My aunt is on Warfarin and she suffers bad spells of weakness and extreme fatigue.

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Reply 8 months ago on Mar 15, 2009 by middleoftheroad, #18038

Thank god you wrote on here! I thought it was only older people who experienced these problems as my doctor also told me my side effects were not due to the Warfarin! I am 25 and had a bilateral PE 5 months ago. I have gained 2stone in 5 months, my hair is very thin and have lovely patches of baldness, I have no memory whatsoever (my job requires me to think on my feet so I am really struggling there) and Acne is no longer a thing of teenage years! I have never had bad skin before to be honest but now I have spots all over my chest and back and occasionally on my face! I have turned from an active, slim, clear skinned woman to a fat, spotty, moody freak! It helps knowing it is not all in my head - only 1 more month to go on these stupid pills and I will hopefully get back to normal!

Also your memory loss might be due to trauma, - I dont feel like I actually went through any trauma as I was just in hospital for a while, then I was out and on pills - but apparently your body knows you have been through something and it can effect memory and speech (nouns are hard to come by in a conversation? Can't think of your words or finish a sentence?).

I hope you are all better and feeling good after coming off your meds (I hope you are off them anyway!)

All the best

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Reply 5 months ago on May 30, 2009 by terodac, #20233

I have had trouble with my teeth breaking and chipping! Never in my life have I had to buy two crowns in two months. I feel like a old lady myself, I take 10mg a day and my INR has to stay between 2.5 and 3.5. Also, notice I burn in the sun more than I use to need sun block of about 15 to 30. I hate this drug! Rat Poision! that is all it is!

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