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I've been on Topamax for 3 years for migraine and it works most o...

Posted at 5:40 PM on Oct 20, 2008 by keepsmiling, #35844
I've been on Topamax for 3 years for migraine and it works most of the time. I am currently having a hard time with the usual side effects of memory loss, hair loss, word recall problems, coldness, depression, no sex drive, and am developing a cough. BUT I had a side effect that has not been mentioned when I first started taking it (25 mg in am and pm -- I'm now on 50mg in am and pm). For about 2 weeks, I would get in my car to go to work and miss my turns because they would cognitively come up too soon (this is after 15 years of going to work the same way everyday). I had to be extremely conscious of my surroundings when I drove or I'd miss all my normal turns. I got lost in my own neighborhood once going home. At work, I'd get up from my desk to go to a co-worker's desk and arrive there amazing fast to my mind. I was experiencing time/space/distance distortion. It became fascinating to me, but it passed.
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Reply about 1 year ago on Nov 02, 2008 by cgarrow, #14085

Thank you so much for posting this. I also am on Topamax and in the past couple weeks have missed turning at my street but blamed it on it being nightime. It has never happened to me before and I have lived here for twenty years. I haven't had a sex drive either for twenty years but cannot blame that on the Topamax. LOL I am now taking 25 mg in the am and 50 in the pm. I am waitng for the weight loss to kick in. Doubt if that will happen though. But beverages do taste sour to me.

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Reply 12 months ago on Nov 25, 2008 by lyned, #14832

I have been taking topamax for about 1 and a half years up to 50 mg twice a day and some days I feel like I am regressing mentally. I make jokes about it when I cannot remember a word during a conversation or when I am trying to give advise to a client, but it really bothers me and although my migraines have returned with a vengeance, I do not want to keep taking this drug...or and the insomnia, well I need another drug to help me sleep, but that's another story.

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Reply 7 months ago on Apr 20, 2009 by ib4babs, #19039

Please tell me more about your "coldness". You are the 1st one to mention it. I have been on the med for 4 yrs now (I think). 300 mg/day. I get cold hands & feet where they become numb (& tingly from med. I assume). Fingers turn white. I have thin skin in those areas. I wear double layers of clothes during winter/some spring & I live in Missouri. Still have tingling some in toes & fingers, ringing in the ears, memory & word loss, little stuttering/thought process before speaking, dry mouth. Weight loss has been nice.

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