My name is M. and I recently and FINALLY got off of prednisone. I was on it for 7 years and came to believe that I could never get off it, until I was finally referred to an endocrinologist, who helped me to get off of it. Unfortunately, my adrenal gland has stopped working so.... I now take a medication with virtually no side effects called hydrocortisone. I will probably have to take it for the rest of my life, but its a BILLION TIMES BETTER than the horrifying prednisone.
-TO L. IN AUSTRALIA- I hope this tid bit of info can be helpful to you. I don't know if you've seen an endocrinologist or know that if you're disease can be managed by another med you can probably go from the pred to the hydrocortisone. I truly hope the best for you, You are only the second person I've ever found who's been on the pred for longer then I was. I hope I've been of some help to you truly, my heart goes out to you.