Only on it for 1 month so far and already having issues. I appare...

Don't know. Just wanted to say that I had the same problem, a cancer specialist had to do my surgery, in fact, my GYN called him in part way through my hysterectomy because she couldn't get the bleeding stopped because the endometriosis was so bad. They told my husband they didn't think I was going to make it through he surgery. I did Lupron for 9 months and am now on hormone pills trying to get rid of the pain, a year and a half later. I have just found out that I am Vitamin D, Vitamin B12, and iron deficient. My endocrinologist thinks I am still bleeding internally. I have no idea how I am going to get through this, but I wanted you to know that you are not alone.

Dear ladies,
I want to let you know that I have taken Lupron for 3 months and I am off. Per the MDs overseas it is not a good medication, it stopped my gallbladder from working. Please hang in there and do not do anymore surgeries. What you have is immflamation. Injections for immflamation will help, however in the US they do not do them, they like to do surgery. I had mine and then Lupron and still was not better until I got 10 injections of Diclofenac. Go overseas if you can and see drs there. American MDs are awful. They will drive you into a grave, do not take Lupron, do not do sugreries. It is immflamation of the organs that is causing it. Do not take pain meds and do not take Lyrica, etc. These are bad, all it will do it make you sicker. Seek treatment overseas and do not stop. One day, like me you will learn that Mds in American are incompetent.

I know how hard this is for you - they found endometriosis on my colon, bladder, kidneys, back of the uterus etc. Were they able to get all of the endometriosis removed when you had your surgery? Did they find it other places besides your uterus and ovaries? If they didn't get it all, that might be where the lower back pain is coming from and where the remaining bleeding is coming from. The endometriosis cells may still be forming even after the surgery, hence the bleeding. What is your doctor telling you about the bleeding? I just finished my 6 month course of Lupron and feel a little better every day. My hot flashes and sleepness nights are my only side effects at this point. I lost 10 pounds on this shot and am down to 106lbs. I'm 5'8"! I look ridiculous - plus I lost all breast tissue ... it sucks! My doctor mentioned that since I am small framed, and they make only one dosage of the shot for everyone (every body type), the Lupron dosage was probably to high for my body type. I received the same dosage as someone that weighs 200lbs. Therefore, the side effects were greater for. Are you on the 3 month shot course or monthly shot course? I did the add-bakc therapy for the hot flashes, mood swings, etc. and it helped. Not 100% but it did help. Hang in there - I can't say it's going to get better before it gets worse because it doesn't. Keep your support system close!

I just started treatment also - and I am having the WORST lower back pain ever! However, the hot flashes aren't bad (so far). I got my first injection on October 21st, when did your symptoms start?

Ok, guys here is the deal. Lupson does not do anything. It is dangeorus, I was on it for 3 months. What i had was tons of adhesions and Lupron does not do anything. However it affects your pituitary gland, so your hail will fall out like mine and it does not stop anything It just stops your periods and when you off of it, then everything restarts. STOP TAKING IT.! iF I KNEW WHAT I KNOW NOW, I WOULD NOT TAKE IT. My family are drs overseas and they are screaming at me for taking it! SO I stopped three months later. My hair still had not grown back. Also, my gallbladder stopped working, because i was taking Estrogen via gel - now I might have to have it removed because it is nto working. DO not take Lupron or Estrogen. Yes, you have endo and some of you have adhesions that is why you are in pain. Adhesions can be dissolved. Think of scars outside on the skin - you can lessen them, right by putting on creams,. etc. Well, adhesion will always hurt until they are dissolved a little and imfflamation comes down. Americal MDs do not treat them. They are keep cutting on you. What you guys need is antiimmflmmatories but not in a pill, in shot to the butt. SImpe, ten of them and two weeks later you are pain free. THen, you repeat it in 3 months again to keep hitting the imfflamation until it goes down. They do that in Europe and Russia because medicine is not controlled by the insurance companies.
Adhesions and immflamtion cause pain, that is why some people had hysterectomy and still in pain. So, the good news is - you are not deadly ill, the bad news is you are in americal where they only give you pain pills or do surgery. My aunt is a obgyn overseas and they treat endo there completely differently. I have a BA degree so I am not idiot rambling, had the same issues, adhesions all over my intestines had surgery but did not get better until I got antiimmflamatory shots. If I were you, find out where you can get treatment and go there I am talking Britain, France or Russia. DO NOT DO MORE SURGERY AND DO NOT TAKE LUPRON IT ONLY MESSES WITH YOUR BODY AND WE STILL DO NOT KNOW ALL OF THE SIDE EFFECTS IT CAN CAUSE! i WILL KEEP TELLING THIS TO EVERYONE AS I WENT THRU IT. IT CAN CAUSE SPINE PROBLEMS, ETC. IT IS DANGEROUS. IT AFFECTS YOUR HORMONES AND PUTUITARY GLAND WHICH IS SCARY TO MESS WITH! LISTEN TO ME, LADIES, HANG IN THERE. I KNOW YOU ARE IN PAIN SO YOU ARE WILLING TO TAKE ANYTHING BUT DO NOT. IT WILL NOT HELP ANYTHING. DEMAND MORE FROM YOUR MDS, THEY KEEP GIVING US PILLS - OVERSEAS THEY DO INJECTION BECAUSE THEY GET ABSORBED INTO THE TISSUES BETTER BUT HERE MDS CANNOT DO IT. DO NOT BE A SLAVE TO YOUR MDS, OUR MEDICAL CARE IS BAD COMPARED TO EUROPE. AND OR BY THE WAY, I AM A CONSERVATIVE, USA LOVING PERSON BUT TREATING ENDO AND MED SYSTEM ARE THE WORST IN THE STATES. YOU WILL SPEND LESS MONEY OVERSEAS AND GET BETTER TREATMENT.
I HOPE I IWLL HELP SOMEONE NOT TO END UP LIKE ME BOLD AND YELLOW FROM GALLBLADDER NOT WORKING. I TURNED ONLY 30 YEARS THIS SUMMER AND I LIVE IN ONE OF BIGGEST US CITIES AND IT DOES NOT MATTER -MDS HERE SUCK LIKE THE REST OF THEM. AFTER ALL THAT TREATMENT HERE, I WAS NOT BETTER UNTIL I GOT THE SHOTS OVERSEAS. COST 25 DOLLARS.. ISN'T IT IRONIC?

Hi! I had lupron 2 1/2 years ago. Let ME tell you a thing or two. This has been the worst thing I could have ever done. Yes, it helped me endometriosis, but I have now neorological problems that out way that. i cannot walk, I have been wheel chair bound. I have had thyroid cancer (diagnosed in April 08) burning feet, the list goes on and on. My doctors told me it was in my head to begin with. I spend one to two days a month in the hospital having IV therapy for the Neurological disorder. The treament are $10,000 a treatment. Thankfully my husband still works and we have insurance. In the mean while I can no longer work, walk with my son on his field trips or do anything that requires strenious activity, I could have had surgery for the Endo and now I wish I would have. The drugs are really the worst thing I could have done. I should have done more research. Good luck in the future with this process. I can only hope you don't come out like me.