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My daughter had just about every reaction mentioned above. She w...

Posted at 11:40 AM on Nov 16, 2008 by brokenhearted, #36634
My daughter had just about every reaction mentioned above. She was being treated for an acute flare of SLE (Lupus in the worst form.) Not only did she lose her kidneys (19 yrs old, second year in Pre-med at Baylor University. She began seeing strange "black ghosts" while in CCICU. The nurse talked to the Doc, he says oh, its only "ICU Psychosis". What??? She wasn't hallucinating, just strange vision. The came the pressure in her head. No one bothered to call in an Optho, so they did Lumbar Puncture after Lumber Puncture. They released us with the pressures still high. Suddenly, my baby sat up and said "Mother is my right eye open?" It was...I jumped into action, got her to a local doc who sent us running to Houston...my daughter lost all of her sight in her right eye and most of it iin her left, she has no peripheral vision or color in the tiny bit of vision she has. The depression is killing her. Her doctor says "yeah, it happend...200 out of 1000. Can you imagine..all he had to do was has a doc use his little light,look behind her eyes and my precious daughter would be simply waiting on a kidney and then back to medicine. Please don't let this happen to you or a loved one...insist that they call in an eye doctor. Our lives will never be the same.
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