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i was put on topamax for migraines back in aug 07. well, i...

Posted at 7:33 AM on Nov 17, 2008 by purplerose81379, #36657
i was put on topamax for migraines back in aug 07. well, i stopped it like 5 months ago. (2june 08) i still feel "out of it" like i'm here but im not. headaches came back but i would rather deal with them than all these side effects. i got severe panic attacks and nervousness, MAJOR HAIR LOSS, AGORAPHOBIA (FEAR OF LEAVING MY HOUSE CUZ IM SCARED TO HAVE ANOTHER PANIC ATTACK), i constantly feel dispatched from my family (i have 3 boys and a husband) every day i feel sick or tired, or both. which led me to stop the meds. (25mg am and 25-50mg pm) i weaned off over like 2 weeks (on my own cuz the neuro told me not to stop it and its all in my head. i had to quit my job cuz of the panic attacks that just happen for no reason. i still feel all the side effects even though i have been off topamax. hair loss, panic attacks, depression, "high" feeling all the time, cant hold a normal conversation. i have changed soooo dramatically from when i first went to the neuro and started this HORRIBLE DRUG. poor concentration, i don't feel like i want to be involved in anything- i just wanna lay on the couch with an ice pack on my head. i don't know what to do. my neuro doesn't know i stopped the drug and i was so mad at him for putting me on it that i didn't go to my last appt. now i have to wait until January to see him.
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Reply about 1 year ago on Nov 17, 2008 by rss, #14577

Hi,
I had the same issues with Topamax. I think you weaned off too quickly. What that means now is the side effects will be stronger. It has been 3 months and I still have "panic attack" like feelings that I never had before. The hair loss stopped 2-3 weeks after stopping the medication. I feel good that I can at least walk now. This medication caused me orthostatic hypotension and tachycardia. I was told I would take longer to get rid of the side effects because I have a slow thyroid. Good luck and don't lose hope.

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