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My son is 3 and has been on Singulair since around springtime (I ...

Posted at 9:45 PM on Nov 22, 2008 by kakennedy, #36828
My son is 3 and has been on Singulair since around springtime (I think... I've lost count). Anyway, during this summer we noticed his behavior had just gone straight to hell. At first I was attributing it to the wonderful world of the three year old, but it was just getting ridiculous. He was having countless meltdowns, screaming bloody murder (I mean SCREAMING to the point of going hoarse), hitting, punching, slamming, banging, crying hysterically for ridiculous reasons, yelling out during the night, and showing OCD behaviors. I was fearing that he might have ADHD/OCD until my husband stumbled upon this website. I remember hearing stories about teenagers having horrible side effects from singulair, but didn't think it was affecting my son at 3. As I read the entries on this website I felt like they were talking about my son. I am taking him off of it to see what happens, but now I'm nervous that his asthma will flare. He's had quite a few asthma episodes since the fall allergy season has started. I suppose he'll need to go for awhile to get everything out of his system to see if the behavior changes, and then I hope to find a new preventative. We have Pulmicort and Xopenex and an inhaler ready! *UPDATE* Well, it hasn't quite been two weeks since I've taken James off of Singulair and - I am not kidding you - his behavior improved the FIRST day. I want anyone who reads this to know that I am not an "alarmist", I DON'T freak out over everything I read, I do a lot of research (kind of obsessive myself :), so please understand that I am not one to usually write things like this...I mean, I pushed my allergist to give it to him in the first place! There are plenty of kids out there that are fine on Singulair, but some are not. I didn't make the connection to the Singulair since the average three year old is irrational and unpredictable anyway, but I KNEW something wasn't right. It wasn't just tantrums and whatever, his overall personality had done a 180. In the last two weeks my son has returned. He still, of course, has three year old moments, but he is back to the caring, loving, curious, excited, social, happy kid I had last year. One of the worst things we were seeing two weeks ago was bedtime behavior. BAD OCD behaviors - everything in his room had to be PERFECT. The curtains couldn't have a peek of light shining through, there could be nothing on the floor, everything had to be in order. He would obsess about things (creatures) coming into his room, when we would say goodnight and close the door he would scream and cry like someone was stabbing him and was petrified. The FIRST night that we stopped the Singulair he laid his head on his pillow, said goodnight and went to sleep. Please keep an eye out for personality changes in your kids. *November update* it's been almost two months since we took James off Singulair and we haven't seen ONE BIT of the horrible behavior that we had w/ the Singulair! Normal "three-year-old moments", but no return of the "devil child", no OCD, nighttime freak-outs, violence, or any of it.
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Reply 12 months ago on Nov 23, 2008 by kate2, #14771

Please visit our parents advocacy website ,it is very informative and helps you to file your adverse report to the FDA.www.parentsforsafety.org
Take the time to do this and help others you are not alone .Kate Miller

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Reply 11 months ago on Dec 04, 2008 by awardtam, #15010

Thank you for your updates. My 2 1/2 yr old (normally very sweet and loving little boy) did a 180 after only 2 days on Singulair. He too was having bouts of bad coughing they think asthma related and so I suggested it to the Ped. He gave me samples and by the 2nd night very aggressive behavior set in(again, not his norm) and the next day he had bouts of uncontrollable crying for no real reason and was hitting and throwing. I went to look up side effects and came across this website. I am so glad I did...he is off this forever..even If I have to keep doing allbutorol breathing treatments! I was a drug rep for 7 yrs and am not usually a big alarmist with side effects as written in the PI, but this was unbelievable. THanks for your honest feedback. At least I know I am not crazy and my son was not just turning in to a terror in front of my eyes for no reason! Allison

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