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I was put on prednisone for asthma. I tapered down from 80 mg to...

Posted at 6:53 PM on Nov 24, 2008 by 46075, #36869
I was put on prednisone for asthma. I tapered down from 80 mg to 10 mg over 2 weeks. After coming off of the prednisone, I experienced nausea, extreme dizziness, felt disoriented, and had muscle weakness so bad that I could barely stand up. After several trips to the emergency room, my doctor, and an endocrinologist, they figured that I needed to be tapered off of the prednisone more slowly. The endocrinologist started me back on 10 mg of prednisone and tapered me down to 2.5 mg. Since I have stopped taking the prednisone, I have experienced dizziness,headaches, tremors, a rapid pulse rate, blurry vision and a sensitivity to light. I have been off the prednisone for two weeks now and every day is different. I have some good days and some bad days. Although I have my strength back and the nausea has subsided, the dizziness is debilitating and it seems that my balance and fine motor coordination is off. I feel very mentally foggy. The doctors do not seem to have any answers for me as to why all of this is happening. It has been a very scary and frustrating experience. I am concerned that the prednisone has done some serious damage to my nervous system. Has anyone ever had these side effects? Do they eventually subside and how long will it take? It has been the longest month of my life dealing with all of the effects of this medicine. Any advice would be appreciated.
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Reply 12 months ago on Nov 24, 2008 by ddeboer, #14812

Don't be afraid it will soon stop. I know exactly what your going through and have helped sevaral people through it. Getting panicky, although a normal reaction makes it worse. You will feel better. Do you take any vitamins?
Dr's NEVER know why things go disarray while on Prednisone. But I promise you from my heart and 5 years experience of Prednisone taking you will be fine. Deep beaths and take it one day at a time. Soon the good days outnumber the bad and you wake up to the ole you.

Please take care and know all is well! Let me know any questions.

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Reply 11 months ago on Dec 02, 2008 by karenp, #14953

Yes, I had to take the prednisone, 50 mg. at 9:00 pm and 50 mg. at 4:00 am and was suppose to take another 50 mg. at 9:00 am to premedicate before my CAT scan because I have an allergy to the iodine. I could not believe how I felt when I woke up, I felt lousy and took my pulse. I could not believe it, it was 112 and went up to 120. Thank goodness I stopped and didn't take the other 50 mg. It is coming down but I still feel lousy. Hope you feel better. Take Care, Karen

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