I am 52 and took levaquin (the doctor described as a very high dose needed for what he felt was a generalized infection he couldn't pinpoint). Within 2 days I began feeling very weak. I also had moved to a new town and couldn't return to the prescribing doctor. I felt so very weak and felt actual pain in my heart I became very scared and went to a friends because I was afraid to be alone. I called the local pharmacist and was instructed to stop taking the levaquin. The following day I went to a new doctor in my new town and my nightmare began.
The new doctor stated "you have a very large heart murmur". I told him no doctor ever told me this before and he insisted they must have, I just don't remember. He decided to do an echo and diagnosed aortic stenosis. He stated it didn't require surgery, yet but would in a few years.
Fast forward to now, 2 moves for my work and changing doctors. Also, to be frank I think a firm denial on my part that I could not have heart trouble diagnosed under the age of 50.
I have received a variety of "borderline" diagnosis'. From COPD, Hepatitis and an inability for my heart to pump proper blood flow to my lungs. While I have had "many" diagnosis there isn't anything concrete and no caused determined or resulting changes to be made to improve my general health.
The one symptom I have, that seems to have worsen as time passes is that what I do seems to build up over time. Energy used and strength used (to carry something while walking) seems to build up to the point of exhaustion and inability to even get out of bed. I have been hospitalized for chest pain 4 times in the last year. The last one being after a business trip, where I took a train and needed to roll and/or carry a very large suitcase. the first night I began to feel weak. The second night my face swelled to a cartoonish state overnight and I began to feel very congested, coughing continually. I didn't go to the hospital because I didn't want to be in the hospital away from home. I Stayed at the conference and returned at the end of the week. A friend took me to the hospital and I was in Congestive Heart Failure. Once released from the hospital, I began to arrange to move back to my home state, to be closer to my family. Now I am here and if I do much of anything (even heavy housework) within days I am too weak to do anything. I am barely managing because I am not working, but I must return to work because I am fast becoming broke. But, how can I take a new job if I know that I can't work long-term. I haven't found a new doctor yet, because most here are not taking new patients and I am just not sure the type of doctor to go to. I am also afraid that they are just stabbing in the dark. Diagnosing borderline "everything" and the treatments for not knowing what is going on could make things worse.
If you have read this far..thank you. If you could reply with suggestions, please do. I feel like my health has been ruined and I don't know what to do to get it back. I only took levaquin for 3 days and all this time later, I still feel pain in my heart. Which is the strangest thing because "before" levaquin I "never" actually felt my heart at all.
Any suggestions , I would be the most grateful.
I think the worst part of it, at least for me, was the uncertainty; the fact that no professional could say with any self-assurance: "Yup, here's what's up with you." On top of the uncertainty among the medical professionals, add a dollop of cynicism about big pharma. Our cursory reading about the blight called deregulation these past 25+ years informs us that the FDA (much like the SEC in the financial svcs industry) has been asleep at the switch. It's very rough. I'm sorry you're going this. It probably does not help, but pls know that there are thousands, maybe tens of thousands, of people floundering about like you who suspect it was a flouroquinolone that felled them. You'll have to be patient.
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