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I too have eosinophilia pneumonia and have been on Prednisone for...

Posted at 11:41 PM on Dec 08, 2008 by pridgenm, #37177
I too have eosinophilia pneumonia and have been on Prednisone for over two years. Doctor told me he had not seen a case of EP since the 1980s but as of last week he has now had five cases of the disease with no explanation as to why. After determining my condition was not parasitic he started me out on 60mg and then I tried to wean myself by dropping 5 mg every two weeks but to no avail. This continued for at least 18 to 24 months until I decided I would try to drop by 2-1/2 mg every four weeks and am now down to, as of today, 5 mg. Walked four miles this afternoon and did experience some wheezing but didn't feel like my lungs were going to explode so I consider this success. Have this wired moon face that makes me look like someone I don't even know but have been pretty lucky to maintain a constant weight with a starvation diet. Am hoping I am able to continue at the 5mg and lose some of these terrible side effects but don't know how long it may take. Last time I was at the doctor's office and in a desperate state, he prescribed (he continues to research all options and some alternative methods to provide relief) Stromectol tablets which is used to treat parasites but is the active ingredient in the treatment of heartworms in animals. Once I determined the side effects did not outweight the potential benefits I took the one dose treatment and maybe, just maybe, it is helping. Only time will tell. Can anyone tell me if the length of time on the treatment is a determining factor for how long the moon face and other symptoms will last. Hang in there and hopefully we can help each other through.
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Reply 12 months ago on Dec 09, 2008 by ddeboer, #15136

Hi,

Just an FYI but I had great luck on weaning by taking every other day.

This is when all the side effects seem to subside at 5mg every other day then 2.5 then off. I was on it for over 4 years and had awful awful damage.

Good luck!!

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