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I posted serveral weeks ago about taking my 5 1/2 yr old off sing...

Posted at 11:28 AM on Dec 09, 2008 by ranbel, #37186
I posted serveral weeks ago about taking my 5 1/2 yr old off singulair. He has done great as far as the asthma, no problems what so ever. The main reason I took him off was due to his behavior. Very moody, hyper, aggitates easily and so on. Well, after the 2nd week, he was like a NEW child...very calm and behaving in school. Well, he has pretty much regressed back to the behavior before taking him off this med. He has now been off of it for 5 weeks. His teacher asked me last week, if I had to put him back on this med, because he was getting back to his old ways. He is currently going the an evaluation for ADHD. I have stuggled with the fact that my son may suffer from this and have tried almost everything to avoid medicating him...I was really hoping this was the culprit to his behavior..He had been on singulair for over 4yrs...Is it just going to take longer to see the full effect of NO SINGULAIR???
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Reply 11 months ago on Dec 09, 2008 by flindy, #15139

my son took this drug from age 10 to 14,i saw wonderful results by taking him off,how ever once in a while he reverts back,i have talked to several parents and they to have this problem,i contacted the fda and they said if they got a trend in reporting they would investigate( yes i know disgusting) i urge you to report with the fda both of your experiances,i call it flash backs,like people who took acid.Good luck to you

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Reply 11 months ago on Dec 09, 2008 by massmomof3, #15140

My son struggled with anxiety and behavior problems for many months after stopping Singulair. The difference was that he no longer was obsessed with death, and also he showed steady improvement. I would suggest you get help for your son (and for you) because the recovery process can be slow and frustrating. Your son's issue may be anxiety if it isn't ADHD. My son doesn't have ADHD but his anxiety affected his behavior in similar ways. I also recommend the book The Explosive Child by Ross Greene. Finally, I would say that after 9-10 months of being off the Singulair there was a significant shift- he became a lot more tolerant and could handle many things that had been difficult before. Today he still has anxiety, but it takes a major event to set him off.

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Reply 11 months ago on Dec 09, 2008 by massmomof3, #15141

Whoops I forgot to tell you to go to www.parentsforsafety.org to join others to fight for better labeling. Also you can read more recovery stories.

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Reply 11 months ago on Dec 09, 2008 by piercesmom, #15145

I am experiencing the same thing. My son was on Singulair for 5 months and off for almost 3 months now. I believe he got 80% after quiting singulair. He developed major anxiety and ocd which is now gone. But he also developed the hyperactvity and aggitates easily which is the 20% missing. I firmly believe singulair has permanently damaged my child, and I feel there is absolutely NOTHING I can do about it.

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Reply 11 months ago on Dec 09, 2008 by u891p, #15155

My son was on Singulair for approx. 4 years. (Is 6 now) Took him off a little over a year ago. For a few months noticed great improvement, then total turn around (in the wrong direction.) Thinking may be Singulair related, but am not sure. In the process of evaluating.

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