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My 4 year old son started taking singulair when he was two. I don...

Posted at 9:24 PM on Dec 13, 2008 by nomeds2, #37290
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child. Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!! Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...). There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it. BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
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Reply 11 months ago on Dec 14, 2008 by theresealbert2, #15236

My son went through the same thing. We need to make people aware of what this drug is doing to children and families. Please visit us at www.parentsforsafety.org and sign our petiton. Please contact Merk and the FDA and tell them about your side son's side effects while on singulair. Please also have your doctor report your son's adverse reaction to the FDA. Best of Luck to you and I am happy your son is feeling better.

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Reply 10 months ago on Dec 16, 2008 by tbmom, #15309

I had tears in my eyes as I read your story, as I too share soo many emotions, when I think back to all the times that I got so angry and frustrated when my daughter was acting out soo bad....she too had such TERRIBLE tantrums, and I would speak to other moms with kids the same age as my daughter, I would mention the severe tantrums, and they would share in my sympathy and stories on their kids tantrums, but never did I hear of them be as bad as my daughters....and honestly my daughter was genuinely a good kid, she has a heart of gold, and she would be sooo apologetic after the episodes as she would struggle to explain why she got herself soo out of control. We have soo much guilt and anger when we think back to the amount of time outs and re-time outs because she couldn't tell us why she did what she did or her original actions. Anyway, I too feel so angry about the loss in time, but I never regret the great moments that we have shared, and I know that we have a lifetime ahead of us, with a well rounded child now. I have started a group on Facebook to try and spread the word re: "Making the side effects of singulair aware to parents of children and teens" as if I would have at least known what to watch out for, or realized it better, then this wouldn't have happened for so long. Anyway, best of luck with you and your children.

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Reply 10 months ago on Dec 18, 2008 by massmomof3, #15369

You are not alone. I have gone through so many of the same emotions. The worst part is all the suffering that didn't have to happen. The best part is rediscovering my son, seeing him "come to life" again after years spent withdrawn and acting crazy and not able to enjoy life. He was 6 when I stopped the Singulair - he was 3 when he started. Now he is 8 and I cherish him, even on his bad days (or bad hours, for although he has occasional behavior problems that pop up from time to time, they are so much more manageable). It is good to connect with others who have suffered - what a trial we have been through. Good luck...

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Reply 10 months ago on Dec 31, 2008 by sherrywin7kler, #15616

I just recently was put on singulair. I looked on this site to see if others developed a "bloody nose." I have a lot of blood in my nose since taking it and I'm not sure because i also recently was put on wellbutrin (i asked for it).
But for me, my terrible astmatic bronchitis is better. I am so thankful for the singulair in this case. I have suffered to the point of not wanting to live with my asthma and bronchitis which have seemed to be uncontrollable. Now, my lungs are working and I am thankful to God. But the blood in my nose makes me wonder what singulair does to cause this...does it open up the vessels and thus let blood out in my nose. It is not a bloody nose, really, in other words blood doesn't flow out of my nose, it's just pilled up along the sides of my nose...and it seems if I don't take the singuair...it stops...like even in the morning before i take it i don't have the amount of blood in my nose that i have shortly after i take the pill.
Anyone else have a lot of blood just hanging out in their nose after taking singulair?

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Reply 9 months ago on Jan 28, 2009 by disablednurse, #16509

For GOD,S sake,find an attorney and start a class-action lawsuit against the manufacturer. If your lucky enough to find one,post it for other victims to read! There is power in numbers.
Website to file consumer complaint to FDAMEDWATCH.GOV and notify the pharmaceutical co. also,be very specific! They will take your call and mail you a response. Make the for profit only drug manufacturers accountable for the pain and suffering endured by victims. I only wish we could sue the FDA for NOT protecting us from these documented,too numerous to count,hellish injuries. These drug companies FAIL to adequately measure drug safety which is NEGLIGENCE and grounds for personal injury litigation. Time for us to get mad and GET EVEN!! Spread the word and may GOD bless us and justice for all.! TC>disablednurse

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