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I have been on Topamax for about two years for migraines, and was...

Posted at 10:49 PM on Dec 20, 2008 by mjd, #37436
I have been on Topamax for about two years for migraines, and was very pleased that after the first month or two, most of the noticeable side effects (dizziness, flat-tasting soda, etc.) disappeared, and the Topamax has been very effective in cutting my migraines in half. However, I've recently begun to question whether other health problems I've been experiencing are actually Topamax side effects and I just didn't realize it. The first is intermittent stomach troubles that have been ongoing for the last year. Starting last January, I started experiencing diarrhea, stomach pain, and other persistent gastrointestinal problems, and through online research, I decided that it was probably either a spastic colon or Irritable Bowel Syndrome. I lost 15-20 lbs. in the spring and summer, but the problems would always recede before I took them to my doctor, then resurface just long enough to irritate me before disappearing again. It never occurred to me until recently that these could be Topamax side effects. The other possible side effect that I assumed was an unrelated problem is interruptions to my sleep pattern. I have been experiencing some occasional bouts of sleep paralysis, and which researching this, read that in normal sleep patterns, one is supposed to enter REM sleep (when dreaming occurs) after about 90 minutes. I frequently enter into dream sleep in as short as a 20-30 minute nap, which does not seem to be normal. Again, researching this, the only two explanations that came up were narcolepsy, which I obviously do not have, and that my normal sleep patterns are being interrupted "by medication." So I'm back to wondering if it's the Topamax. Has anyone experienced similar sleep symptoms?
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Reply 11 months ago on Dec 22, 2008 by rmcfarla, #15451

I also had sleeping problems. I could not fall asleep. I also began experiencing memory loss, confusion, personality changes, crying at the least thing. I spoke to both neurologist and family doctor. They felt we should monitor to see if this was related to another condition or the Topamax. About 15 days ago, we began tapering off the Topamax, and I have felt a dramatic change in my personality. I don't feel as tired all the time and I am able to fall asleep, although I do have take Ambien to feel like I get a good nights rest. Dr. says that will be temporary and the memory is getting better. I know the migraines improved with the use of Topamax,but the side effects are really not worth it with other drugs available. Hope you can find another to use.
Rosemary

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Reply 11 months ago on Dec 23, 2008 by msdickso, #15463

My sleep habits since taking topamax are like a roller coaster. I've been on topamax (50mg a day dose) for about a month and a half now. At first my insomnia was so severe I was seeing the sun rise most mornings. Now as soon as I fall asleep I am out like a friggin' light and it's next to impossible to wake me up. I've always been a light sleeper, waking up at even the slight sound of my bedroom door opening... but now not even my blaring alarm clock can wake me up sometimes. But its give or take though. Sometimes I sleep like the dead and other times I sleep so lightly its ridiculous.

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Reply 10 months ago on Jan 19, 2009 by jennellexomarie, #16209

hi, im having a simular issue. my sleeping is horrible im new to the topamax. im taking it once at night. i can sleep exactly till 1am then im up for the whole entire day. im crying non stop somtimes, im not my normal self and its noticable... help???

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