hello, im 25 and was diagnosed with lupus nephritis 4 years ago, ...

hello, im 25 and was diagnosed with lupus nephritis 4 years ago, among other meds i was taking 60mg of pred for about 8 months with chemo for my damaged kidneys. in three years my dose went up and down between 60mg and 15mg. the side effects i had were at first extreme water retention, my skin was like play doe, swollen vulva, swollen leaky breasts, hamster cheeks, extra chin, i had extreme hunger cravings , wanted to eat every thing in sight but my husband helped me to maintain a proper diet and i did not gain any weight except for my face and breasts and water retention for around 5 months after diagnosis. i also had all the other effects like racing heart, chest pain , breathlessness, tiredness, excitement, bad mood swings. now after 5 years i have CAREFULLY weaned MYSELF down to 5mgs a days the moon face has gone down but i have the fatty deposit at the top of my back at my neck that happens with long term use, but only i can really notice it, i get nose bleeds cause skin is thin up my nose, i use glycolic moisturiser and have glycolic peels on my face to help with skin renewal keeping ageing at bay and also have factor 50 sunscreen on prescription, take zinc for my hair loss (prescription 220mgs) has helped a lot with hair loss, use pure glycerin on my body to keep the skin soft and less delicate( glycerin can be quite gloopy and stickes on the skin for a good hour before soaking in but does wonders and is in most mosturising creams, use mouth wash for gum desies to keep the bleeding at bay and keep the teeth strong, i buy probiotic yogurt dring and pills for digestive system to get rid of the gas bloating and constipation/diarrhea, take meds to prevent bone problems, drink a pint of full fat milk with some nesquick mixed in every day, i get bad headaches after eating sweet things sometimes that can last all day, i just live with them. don't take pain killers, they just go after ive slept im constantly finding new ways to cope with the preds, and am now 3 and half months pregnant with my first baby, doc told me 4 days ago that he wants to start putting up my steroids to protect baby and me, so im panicking a bit about the moon man coming back, and hair loss has started again big time also cause of pregnancy. once ive had the baby im going to start back on my routine. perdnisolone is a nasty drug but also a life line for many people who cant get off it and need if for the foreseeable future until something can take its place, so im jus trying to stay 1 step ahead of the drug, the only thing i struggle with is exercise , starting to loose my memory more often, and eye sight is playing up, keep going cross eyed!!! gonna try that mangasteen stuff, worth a shot... thanks for reading, sorry bout spelling. love l.