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ive been on levothyroxine for about 6 years...... for an underact...

Posted at 8:53 PM on Jan 01, 2009 by joanne8973, #37639
ive been on levothyroxine for about 6 years...... for an underactive thyroid gland and i am stunned reading all these side effects as for about 4 years ive suffered from severe joint paint, fatigue ,very low moods , foggy brain, mood swings hair loss, all i want to do is sleep and even then im still tired. I am 35 and feel about 80 as my back hips legs calfs and feet all hurt so bad. I have been to the doctors so many times and got no where. ive been told your in pain because your depressed( who would not be depressed ) but i said i am depressed cause im in such pain. i remember asking once if it was due to the thyroid or the drug and the doctor said your levels are fine and the drug gives no side effects. I feel like stopping it right now to be honest. I only got it after my third pregnancy and i remember reading once it can correct itself as it could be caused by pregnancy ????? any ideas. ive copied and pasted a lot of these comments and i will be making a trip to doctors to be fobbed off again im sure ....but its worth a try
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Reply 9 months ago on Jan 21, 2009 by maggieg, #16247

Do you take your thyroid meds on an empty stomach? If not, do so and wait to eat for an hour. I had that problem for 8 years till i discovered that on my own. Also things like mild and walnuts can interfere with absorbtion. My numbers were always in the "correct range", but something was clearly wrong. Try this.

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Reply 9 months ago on Feb 01, 2009 by nverma13, #16644

My serious hell started at age 43 and I am 49 now. Diagnosis was hormonal changes. My doctor put me on Zoloft, klonopin, xanax, flexril, pain killers, and prescribed many other meds to control my very frightening panic attacks, depression, fibromyalgia, migraine, arthritis type pains, knee pains, insomnia, restless legs, tingling, numbness, hot flashes, and many other indescribable symptoms.
Nothing helped. I stopped going to work and stayed in bed most of the year and a year later stopped taking all of the prescription meds because of the serious side effects etc. I continued the Zoloft though. Zoloft helped with my panic attacks but all other symptoms are intact and some new symptoms have joined the list.
New development is that about 6 months ago I started feeling very tired, drained, exhausted, thinking became slow; weight won’t come off (put on 40 lbs last couple of years). My depression and other symptoms listed above worsened.
Now in Dec. of 2008 I got my annual physical done and the blood test showed that my thyroid hormone was low (hypothyroidism) so my doctor put me on Levoxyl which drove me even more crazy (manic depressive type symptom, restlessness, blurry vision, and vomiting. Ear infections, sore throat, cough that won’t go away for weeks. But there were moments here and there when I found myself feeling good and happy but the moments didn't last longer than half hour. There was one week when I didn't get any migraines and my appetite reduced but then there were times when I felt very very hungry and ended up eating a lot.
Fed up with my indescribable hell and the doctors I decided to check into some alternative medicines, home remedies, and herbs. A friend who is a nurse and has been going through worse hell recommended that I start taking Thyroidinum 30cc, a homeopathic tincture, and slowly stop the Levoxyl. So I ordered it online. Then I researched on Black kohosh and bought it in liquid form from whole foods. I also bought chamomile liquid form and progesterone cream. I looked for bioidentical hormonal creams but didn't find any so decided that I will try progesterone cream.
OnDec. 26, 2009 I started taking Thyroidinum 30cc 10 drops in 1 ounce of water three times a day and at night before going to bed I started taking black kohosh only 10 drops in water. Recommended dose of black kohosh is 30 drops in water three times a day (total 90 drops a day). I was little afraid to take that much because I read some reports which said that it can cause liver damage. I tried it couple of times during the day but it made me feel funny so I stopped taking it during the day time.
Now I don’t know what’s making me feel good whether it’s Levoxyl adjusting to my body or Thyroidinum 30cc or black kohosh. Believe it or not I have never slept like this in my whole life before as I have in the past one week. I go to bed at 10 PM and wake up at 9 AM. I have no idea what happens in between. I am happy. Energy is great. I go out to do things I had lost interest in in the past 6 years. No migraines. No joint pains. No body pains. It almost feels like I am woken up from a very long sleep. I don't know what’s making me feel good. It’s too early to tell but I will keep you all posted if anything changes. Please give me feedback regarding my condition and the meds I am on. I will also be posting this message for the greatest and the best homeopathic doctor Pankaj Varma /Max Varma and see if I can get some help in that forum. I started Thyroidinum without consulting a homeopathic doctor and I want to quit Levoxyl and Zoloft in the next week or two. I am afraid to do so but I am really fed up with the doctors heavily medicating me for the past 6 years and all I have felt is minute help in couple of symptoms and gotten twenty additional side effects from the prescriptions. I have not had a normal life since I turned 43 and I will be turning 49 in Feb this year.

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Reply 9 months ago on Feb 01, 2009 by nverma13, #16645

My serious hell started at age 43 and I am 49 now. Diagnosis was hormonal changes. My doctor put me on Zoloft, klonopin, xanax, flexril, pain killers, and prescribed many other meds to control my very frightening panic attacks, depression, fibromyalgia, migraine, arthritis type pains, knee pains, insomnia, restless legs, tingling, numbness, hot flashes, and many other indescribable symptoms.
Nothing helped. I stopped going to work and stayed in bed most of the year and a year later stopped taking all of the prescription meds because of the serious side effects etc. I continued the Zoloft though. Zoloft helped with my panic attacks but all other symptoms are intact and some new symptoms have joined the list.
New development is that about 6 months ago I started feeling very tired, drained, exhausted, thinking became slow; weight won’t come off (put on 40 lbs last couple of years). My depression and other symptoms listed above worsened.
Now in Dec. of 2008 I got my annual physical done and the blood test showed that my thyroid hormone was low (hypothyroidism) so my doctor put me on Levoxyl which drove me even more crazy (manic depressive type symptom, restlessness, blurry vision, and vomiting. Ear infections, sore throat, cough that won’t go away for weeks. But there were moments here and there when I found myself feeling good and happy but the moments didn't last longer than half hour. There was one week when I didn't get any migraines and my appetite reduced but then there were times when I felt very very hungry and ended up eating a lot.
Fed up with my indescribable hell and the doctors I decided to check into some alternative medicines, home remedies, and herbs. A friend who is a nurse and has been going through worse hell recommended that I start taking Thyroidinum 30cc, a homeopathic tincture, and slowly stop the Levoxyl. So I ordered it online. Then I researched on Black kohosh and bought it in liquid form from whole foods. I also bought chamomile liquid form and progesterone cream. I looked for bioidentical hormonal creams but didn't find any so decided that I will try progesterone cream.
OnDec. 26, 2009 I started taking Thyroidinum 30cc 10 drops in 1 ounce of water three times a day and at night before going to bed I started taking black kohosh only 10 drops in water. Recommended dose of black kohosh is 30 drops in water three times a day (total 90 drops a day). I was little afraid to take that much because I read some reports which said that it can cause liver damage. I tried it couple of times during the day but it made me feel funny so I stopped taking it during the day time.
Now I don’t know what’s making me feel good whether it’s Levoxyl adjusting to my body or Thyroidinum 30cc or black kohosh. Believe it or not I have never slept like this in my whole life before as I have in the past one week. I go to bed at 10 PM and wake up at 9 AM. I have no idea what happens in between. I am happy. Energy is great. I go out to do things I had lost interest in in the past 6 years. No migraines. No joint pains. No body pains. It almost feels like I am woken up from a very long sleep. I don't know what’s making me feel good. It’s too early to tell but I will keep you all posted if anything changes. Please give me feedback regarding my condition and the meds I am on. I will also be posting this message for the greatest and the best homeopathic doctor Pankaj Varma /Max Varma and see if I can get some help in that forum. I started Thyroidinum without consulting a homeopathic doctor and I want to quit Levoxyl and Zoloft in the next week or two. I am afraid to do so but I am really fed up with the doctors heavily medicating me for the past 6 years and all I have felt is minute help in couple of symptoms and gotten twenty additional side effects from the prescriptions. I have not had a normal life since I turned 43 and I will be turning 49 in Feb this year.

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Reply 9 months ago on Feb 02, 2009 by joanne8973, #16666

keep me posted id like to know what has made you feel better and i will try it myself.
jo

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Reply 7 months ago on Apr 06, 2009 by scooby_beth2002, #18669

I been on levothyroxine 150mcg for about 3 months and I don't like. I have gain wieght and I'm always wanting to sleep . I hate this.. my house work is gone down the drain because I have no angery to do it. I would love to get off this but I don't know what will happen if I did. Please Help

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Reply 5 months ago on May 14, 2009 by shari47, #19830

I just started taking Levoxyl a two weeks ago for hypothyrodism. I am currently taking 25 mg daily. This last week my hips, knees, ankles, feet,elbows, wrists, arms,hands and just about all my joints have begun hurting and I feel like I am an 80 year old. I am 47. This isn't supposed to be a side effect of this drug but I saw that you had the same side effect. What have you found out? Thanks.

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