I have PCOS, and was experiencing dysplasia of the endometrium. ...

I have PCOS, and was experiencing dysplasia of the endometrium. After some search, a doctor recommended the Mirena. This was November of 2008. The installation should have been a clue of things to come. I have never had children, and had a tipped uterus, and as a result they had to use the clamps that look like needle nose pliers to grab my cervix, and after 45 minutes of stuffing, got it in. It was excruciating. I was working out 6 days a week, 2 1/2 hours a day, and eating South Beach Phase 2- and had lost 80 lbs and had maintained for 1 year. I asked if it would in any way cause weight gain, and was told it would not. Within the first month my diet/exercise regimen failed, and despite working out 7 days a week and resuming Phase 1, I was gaining 10 lbs a month- which my Doctor would not discuss with me except to dismiss it. To make a long story short, after life threatening edema and bleeding 22 or 23 days straight and with my now discovered sensitivity to progesterone, I required a total abdominal hysterectomy to remove an enlarged, boggy, and fibroid riddled uterus. I am doing 200% better now, and I am sure there are some women the Mirena works well for, but I was not one of them, and I feel the Mirena actually endangered my life (that and the arrogant doctor who inserted it and told me to be patient. I had it in from 11/2005 to 7/2007- is that time enough?) Please, please,please. If something does not feel right, do not NO for an answer. I did not want children so I was okay with losing the ability to bear children, but having a TAH at 38 is a life change that most younger women would not want. Would I have had to have it anyway? Perhaps. But I could have been in a position to be navigator in my care rather than reactive as I was forced to be.