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I started Lupron in April of 2008. The year before this I worked...

Posted at 1: 8 AM on Jan 10, 2009 by jamielk, #37876
I started Lupron in April of 2008. The year before this I worked HARD to lose 80 lbs. I finally got down to my goal weight because I was tld my endometriosis symptoms could be relieved if I wasn't overweight. I had a laparoscopy in March of 2008 confirming my diagnosis- Lupron was a last minute decision because of my age and status the doctor didn't want to do the hysterectomy right away. My endometriosis is spread throughout the body- including the lungs. While Lupron helped with the pain I was experiencing, it caused other pain. Pain that I can no longer even deal with. I became lethargic, depressed, and angry. My hair was falling out in large clumps. I didn't gain weight right away.. except a pound the first shot and three pounds hte second shot but I figured that was alright if it was only like 15 lbs total. I oculd deal with that. Here I am almost a year later. my last injection was in August. I gained a total of 47 pounds. I am a fat slob. I couldn't work out because my bones hurt so bad while taking the medication. No one around me knows what I went through physically. They al think that it was just some excuse to be a lazy fat cow but it truly HURT to move. Just simply walking from my bedroom door to my bed killed me. It hurt my ribs, my knees, my shins, my back. There were times when I couldn't even get out of my bed ebcause I just didn't have the energy. Then the depression started shortly after losing a large amount of hair. By now I am thinking about how ugly i've become on top of how fat I am. Nothing went right but my doctor pushed the shot. I figured hes the one with years of experience he couldn't possibly be this wrong. I trusted him. When I would go to him with complaints of my weight gain he would tell me to stop eating. The problem was... I wasn't eating. I was too sick to my stomach to bother. Then when I would get hungry i'd over eat. I bled a lot through the shots and I still had pain here and there but I was too afraid of what he'd put me on next if I complained. I started to forget simple things. My career was going down hill because they were sick of me not being 100% commited to my job any more. I cried all the time. I finally got sick of the weight gain while I was on my shots and I decided to work out regardless of how I felt and three times I passed out in the gym and was transported to the hospital where I had to listen to their advice on being overweight WHICH WASNT THE REASON I WAS PASSING OUT TO BEGIN WITH but no one wnats to hear what I have to say. Every one just assumed that I was this pig who never worked out in her life and over did it this time. What no one understood was that three months before the incident i was my average weight. I was tachycardic all the time- my normal resting heart rate while i was on my shots was 162. During a work out it would get up to 220! Ive been off them since August and I haven't lost a single pound. I get up at 4am every day and work out. I park as far away as possible. I use the stairs instead of elevators. I eat healthy. I cut out extra sugars and stopped rewarding myself when I deserve it. I started these shots at 155lbs and today I am 215. Ive been on a strict monitored diet, diet pills and work out regimens and I am still 215. My knees kill me nad sound like velcro when I walk- ive even fallen a couple of times because they hurt that bad. My back still hurts and my neck still wont turn to the right completely because of a nerve that pinches or what have you in there that sends the sharp pain through my face when I move. I still have the depression but i think thats more because of my weight now than it is anything else.. and I finally ended up losing my job. I recently saw my OB for a follow-up where he stuck me on yet another birth control. This one makes me vomit and gives me stomach cramps so Ive decided im done. I won't take another pill because its making me worse. Id rather have my uterus fall on the floor than pop another drug.
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Reply 10 months ago on Jan 27, 2009 by dciara33, #16475

I cannot believe there is someone who has gone threw the same exact ordeal i have with the weight gain and the pain in my knees and back and hair loss from the lupron shots.

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Reply 9 months ago on Feb 03, 2009 by lbw323, #16723

jamielk
i know exactly what you are talking about! i took my first lupron shot last year may 2008 as well ( a 3 month dose in one shot) and took another 3 month dose in august. it was a completely awful experience. my joints hurt especially my knees o. i could barley walk and needed help to get up and down the stairs. my already short hair fell out my elbow joint became stiff every night i had terrible mood swings and gained 20 punds ( i started out at 140 lbs) i am trying to lose it now and cannot seem to shake the wieght i work out 5 days a week and i belive my metabolism is shot!. i have always been fit and slim and i wish i could start seeing some real results. lupron side effects are horrible.
lbwnyc

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Reply 9 months ago on Feb 10, 2009 by lmartin91, #16921

I have gone through the exact ordeal. I was on Lupron for over 2 years and I have been off it a year and a half. Throughout the injections I gained 30 lbs. and since I have been off them I have continued to gain and gained another 20 lbs. I workout every day and I eat extremely healthy. I never imagined when I started Lupron that it would have changed my life dramtically and not in the best way. The pain has come back so it hasn't even helped me that way. The side effects are horrible and I would not recommend this for anyone.

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Reply 9 months ago on Feb 16, 2009 by amyavacc, #17107

Oh my God. My doctor never told me about any side effects but the obvious hot flashes and night sweats. I though I was going crazy when my bipolar symptoms that I've had under control for so long came back. I had to start seeing a psychiatrist weekly and lost the job I loved. I have been extremely depressed. I attributed my #40 weight gain to the alternating depo shots. I had no idea that my increased facial hair could be a side effect too. I have been crying all night and this is not unusual. I am due to get another shot (a 3 month dose) in a few weeks and I am terrified. For me, most side effects would be worth it because this medicine is buying me time before I have to get the inevitable hysterectomy. I am 37 and have no kids (or man in my life). All I have ever wanted in my life is to be pregnant and have children, but my uterine fibroids are preventing this. I now don't know that I could find a mate the way this medicine is effecting me! It is getting increasingly difficult to leave the house! I use to be extrememly outgoing and social, now you can't drag me out of the house and I am terrified to start a job. At least now, I don't think it's all me going downhill. I know that once I stop this medication, my life can begin again. Thank you. Amy

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Reply 9 months ago on Feb 16, 2009 by jamielk, #17122

Well, I stopped taking that birth control and I've continued to do what I was doing before. I also started a new job at a pediatric doctors office so I'm working even more. I had gained another three pounds after my original post leaving me at 218. today I am happy to announce, that in a few days will mark my 1 year since I started taking the medicine, and exactly 6 months since I had my last shot and I've finally lost some weight! I am 204lbs right now and hopefully still losing. My knees still hurt a lot and I still get lethargic at times but I'd rather deal with the small stuff to see some results. I havent fully recovered yet but there is still hope! To those of you still on the shot or worried about what happens next- I wish you all the best of luck. Don't give up. I never did and I finally see the results and it feels fantastic. After everything i've been through- much of which you're all experiencing now- I feel great just losing a few lbs. I hope you all have the same exciting news too! Just remember to try and stay positive even though it's hard to do on this stupid shot!

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