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This is an update about my son who took Levaquin 16 months ago wh...

Posted at 1:27 AM on Jan 23, 2009 by martinsmom, #38294
This is an update about my son who took Levaquin 16 months ago when he was 16 years old (he is now 17). My son was given Levaquin September, 2007, to prevent an infection after minor sinus surgery. His symptoms were severe muscle weakness (he would get exhausted walking from the parking lot to a store and back, severe joint pain (in thumbs, wrists, elbows, knees, and ankles), dizziness (he felt like the room was moving away from him and would lose balance), and headaches (a severe pressure in the back of his head that was constant and then shooting pains in his head that would come and go for no reason). He then developed IBS a few months after taking Levaquin. He was an athlete at the time and in very good shape. Prior to Levaquin, he was rarely sick and headaches were equally as rare. He was a junior at the time and as a result of the Levaquin, missed most of his junior year. He kept up through home instruction and maintained 2 honors classes, but had to drop his AP class. In the first 4 months, his muscle weakness, dizziness, and joint pain (except for his knees) went away. As a parent, it is very painful to have your son hold his head in his hands and ask you to make the pain go away…but you can’t. It took 9 months for his 24x7 headaches to go away. His IBS recently went away after giving him enteric coated peppermint pills twice a day. All that is left now is his knees hurt when he plays sports, so he can't. The knee issue is pretty minor compared to where he used to be. Here are some things we learned: 1) We tried giving him magnesium, potassium, selenium, calcium, and B-complex after the Levaquin...but it didn't make him better; 2) We took him to over 20 doctors; most couldn't believe it was Levaquin, but some did; 3) Ortho-McNeill will admit that Levaquin can cause these symptoms (I called them); 4) There is no magic pill, once you have ingested Levaquin and develop symptoms, you can only treat the symptoms; 5) Numerous tests of all types over several months never came up positive for any disease or illness; 6) Filing a Medwatch report with the FDA is important since every report helps; 7) Levaquin is not FDA approved for anyone under the age of 18, but is still allowed to be prescribed; 8) Doctors get most of their information on drugs from the pharmaceutical representatives, so BEWARE and do your own research before taking medication; 9) Most drugs have side effects, but beware of the ones that have long lasting effects like the fluoroquinolone family; 10) Never ever lose hope or the belief that one day you will be better. The power of faith does wonders for your health. I don't know if this post will help anyone. People are affected by this drug differently and recover at various rates. Most people do recover and you need to believe you are one of them. Fortunately for my son, it looks like he is okay now, but it has been an extremely long, difficult road. Keep your faith as my son did, and I'll pray that you all recover. If you haven’t taken this drug yet, then don’t. If you are taking it, then stop. If you have already taken it and have developed symptoms, then be strong and keep the faith.
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Reply 9 months ago on Jan 23, 2009 by gimpinformonths, #16311

I thank you and your family for the follow up and the words of encouragment. I am so happy that your son is on his way to recovery. Oh to be 17 again huh? I am almost at 3 years into this and although some of my symptoms are less acute, they are unfortunately still just as present now as they were a few months into floxing. I am 43 yrs old now and as we all age, it becomes more difficult to recover, but I am at least more aware of everything that goes into my body and through my own story I know I have prevented more injury. As a parent myself (he will be 13 next week!!!) I keep the focus on my son and that carries me through most of my worst days. Take care and tell your son that I admire his strength and courage.

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Reply 9 months ago on Jan 23, 2009 by lily772, #16316

Thank you for your follow up. In fact, I want to be died last night because I felt miserable. I've been sick constantly since 10.27.2008. I took 3pills of Levaquin750mg and 9tablets of Avelox 400mg and 2pills of Levaquin 500mg for sinus infection. I went ER three times and I was hospitalized. I can not eat well except soup because of my stomach pain. Then, my side effect is getting worse.. My symptom is fever/cold, tingling sensations, intense itching, joint pain and numbness. I am wondering if magnesium, potassium, selenium, calcium, and B-complex are helpful for him to get well? Help me to get rid of this symptom. Thank you!

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