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My son has been on Singulair for about a year and a half...it rea...

Posted at 3:56 PM on Feb 12, 2009 by starbright, #38902
My son has been on Singulair for about a year and a half...it really seemed to help his allergies...at least at first. This winter has been very dry and I have been having to give him other over the counter allergy medication as the Singulair isn't helping much. He also started losing weight..just not hungry. At first that was ok as he needed to lose a little but then he was getting too thin. He wasn't eating much at school but refused to take a lunch from home. I took him to the doctor just recently to see if he was physical ok since I didn't know what was causing the weight loss. The blood testing showed everything was normal and I just told him he had to start eating better...he has somewhat...but also he finally told me he has been feeling very depressed...seriously depressed and having suicidal thoughts too due to some kids picking on him at school. I knew there were problems as he complained alot but I had no idea it was this serious. I have taken him out of that school. Right now I don't know if the Singulair could be adding to this depression or if its all just due to the bullies. While he complained a lot he never acted as if it was bothering him that badly or I would have gone to the school about it. Anyway I stopped the Singulair and am going to see if his mood improves or not. After reading some of the scary posts on here regarding the side effects I am wondering if this is a good idea stopping it or not. I am waiting for a call back from his doctor on it. Since its once a day..its kind of hard to wean them off of it...but I could cut it in half ..do that for a few days, then cut it smaller and so forth. His is chewable so I could do that with no problems. He is 13.
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Reply 8 months ago on Feb 12, 2009 by zsmom, #17026

Please visit our advocacy site at www.parentsforsafety.org for more information on Singulair and it's side effects. We have a page dedicated to recovery stories and a page that explains all the side effects and lists side effects reported by parents that are not currently on Singulair's label.

Singulair has been clinically proven LESS effective than intranasal corticosteroids, the most effective treatment for nasal allergy symptoms, which have a low risk for systemic side effects.

It has also been clinically proven LESS effective that inhaled corticosteroids for asthma.

My son took Singulair for 5 1/2 years and developed depression during the last year he took it. When we stopped giving him Singulair, I saw a difference in his demeanor and mood within days.

Good luck with your son, I wish him the best of health.

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Reply 8 months ago on Feb 13, 2009 by flindy, #17038

I dont think you mentioned your sons age.Well my son was 11 years old,a straight a student in AP classes,popular social a great kid.One day in october that year he suffered his one and only "asthma" attack,but it was devastating,leaving him on a respirator for 10 days ,in the hospital for a month.That is when our nightmare with singulair begain.At first he was just a little teary not knowing why he was sad,i blamed it on the trauma,as did the doctor i may add,then he was afraid to eat,sure he was obess and the kids were laughing at him,not the truth,but i like you thought it was bullies.Then came the afraid to leave me ,sure i was going to die if he was not here with me,then i knew what ever was going on was bigger than a mothers love,i saught professianal help for him,but it only got worse,depression,anxiety,panic attacks,agoraphobia.this sweet innocent child in the course of 3 years,had completely lost control of his life,while under the care and guidance of doctors.Until Kate went public with her story i had no clue,i certainly was not told by any of our Doctors this could be the case,and yet stopping cold turkey,3 days of this med was clear,this had been the problem all along.It has almost been a year off now,a tough year for the guilt i feel,but a year of great strides.He is 15 now and using his voice to speak of what happened to him,he understands that the bulling was in his head,a feeling all were talking and laughing at him,but not the truth,that the dreams and nightmares of my death,were that dreams and not the trurth.We may never fully understand what our children have been through,but it is HORRIFIC,good good luck

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Reply 8 months ago on Feb 13, 2009 by starbright, #17044

Thanks for your post flindy...my son is 13..just turned 13 in December actually. I am sorry your son went through this but glad he is feeling better now...I have read several posts on here where the kids didn't get much better after stopping the medication and that concerned me alot. :( My son is overly sensitive to medication and has had bad reactions to other medication before...everything from affecting his behavior...thoughts and feelings to physical reactions such as hives, facial swelling, etc. One was even an antibiotic he taken many times before and did well with then suddenly the next time he got sick and the dr RX'd this, he had an allergic reaction to it!

I just don't understand why he did fine with the Singulair all this time then now starts having problems...but it may be the same situation with the antibiotic...suddenly can't handle it. I just pray when it gets out of his system he is ok...

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Reply 8 months ago on Mar 01, 2009 by zsmom, #17577

You had mentioned in your post that Singulair seemed to stop working. It recently came to my attention that Singulair is not effective for everyone who takes it. I found it interesting to learn that clinical studies indicate that genetic differences may influence this differential response. I hope your son is doing better after being off Singulair for a couple of weeks.

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Reply 7 months ago on Mar 25, 2009 by khaught, #18473

The chewables often contain aspartame which I am highly allergic to. There are many stories about MS and other conditions associated with aspartame. Is it possible that this might be contributing to the problem? I don't know, just a thought.

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